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OT-Human Kidney Troubles
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IRunOnFaith
Reg. Dec 2009
Posted 2018-11-08 12:28 PM (#7412763)
Subject: OT-Human Kidney Troubles



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Two weeks ago I was hospitalized with my right kidney. UTI turned severe Kidney infection, hours from turning septic.  Dehydration and anemia as well. 2 bags of fluids, Zofran, hydro, shot of rosephin(sp?)  and a few other medications later I was sent home. Spent about a week in bed with a heating pad as a best friend. ( I am never cold. My house stays at 68 year round and I put a heater in my little ones room.)  
My right kidney is pretty much toast according to the doc but the pain is really dull and almost annoying rather than hurtful. I haven't gotten a plan of action because right now it hasn't gotten worse. 

I drink dandelion root tea, take vitamin C, and eat a pretty fair amount of green veggies like brussels, broccoli, etc as well as chicken and red meat daily. I also drink at least 100 ounces or more of water while at work. Weekends are hit or miss but I still feel like that's something so the whole anemia thing being related to my diet just doesn't make sense. Doc didn't really believe me when I told him my diet... 
I had SEVEN prescriptions filled but I am only taking OTC ibuprofen for pain every few days. I don't really want to be on medicaitons. I did do the full round of antibiotics but haven't touched the rest because they are for symptoms I no longer have. I started a probiotic after the 7 days of antibiotics. Finished it this past Sunday. Feeling a bit more normal. 

Has anyone successfully slowed the progression of a failing kidney? I feel like a sitting duck waiting for it to turn on me again. And to be honest I'd rather have triplets at home with no medication than have kidney pain again.... 

 Saw the doc yesterday and he suggested we revisit in a few months to check on it. Told me I needed to watch my diet and acidic food intake. I need coffee ya'll and I can't drink it without my kidney crying....  Help me...?  
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3canstorun
Reg. May 2007
Posted 2018-11-08 12:36 PM (#7412765 - in reply to #7412763)
Subject: RE: OT-Human Kidney Troubles



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Bear can help you.  He is a kidney expert. 

I am sorry you are having this.  I only have one, so kidney's are something I am interested in.   
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Nateracer
Reg. Feb 2008
Posted 2018-11-08 12:49 PM (#7412766 - in reply to #7412763)
Subject: RE: OT-Human Kidney Troubles



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99% sure ibuprofen is a kidney killer.  My grandma is in stage 3 kidney failure and they make her take tylenol for pain. 

Just a quick google search brought up this website.  It doesn't sound like coffee is terrible as long as drank in moderation. (like 1 - 2 cups per day.
https://www.kidney.org/newsletter/coffee-and-kidney-disease
 
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IRunOnFaith
Reg. Dec 2009
Posted 2018-11-08 1:50 PM (#7412778 - in reply to #7412766)
Subject: RE: OT-Human Kidney Troubles



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Nateracer - 2018-11-08 12:49 PM 99% sure ibuprofen is a kidney killer.  My grandma is in stage 3 kidney failure and they make her take tylenol for pain. 



Just a quick google search brought up this website.  It doesn't sound like coffee is terrible as long as drank in moderation. (like 1 - 2 cups per day.
https://www.kidney.org/newsletter/coffee-and-kidney-disease

 

Bear and I have had many health talks. He should see the post soon and comment when he can.

That's odd that they would prescribe me Ibuprofen if that is true? I told the doctor I had been taking it every few days for pain...   
 
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Chandler's Mom
Reg. Jan 2015
Posted 2018-11-08 6:41 PM (#7412803 - in reply to #7412778)
Subject: RE: OT-Human Kidney Troubles



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IRunOnFaith - 2018-11-08 1:50 PM

Nateracer - 2018-11-08 12:49 PM 99% sure ibuprofen is a kidney killer.  My grandma is in stage 3 kidney failure and they make her take tylenol for pain. 



Just a quick google search brought up this website.  It doesn't sound like coffee is terrible as long as drank in moderation. (like 1 - 2 cups per day.
https://www.kidney.org/newsletter/coffee-and-kidney-disease

 

Bear and I have had many health talks. He should see the post soon and comment when he can.

That's odd that they would prescribe me Ibuprofen if that is true? I told the doctor I had been taking it every few days for pain...   
 

So sorry you're going thru this--sending prayers your way
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Southtxponygirl
Reg. Nov 2006
Posted 2018-11-08 6:48 PM (#7412805 - in reply to #7412763)
Subject: RE: OT-Human Kidney Troubles



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Awww I'm sorry Tess that you have been sick and still hurting I hope that the Doctors can get you feeling right as soon as possible, I know its really hard on you when you have a small child to think about..  
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jake16
Reg. Apr 2006
Posted 2018-11-08 7:37 PM (#7412811 - in reply to #7412763)
Subject: RE: OT-Human Kidney Troubles


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Honestly,you need to see a kidney specialist.Im sorry this happened to you,but you do need to put yourself first right now,so you can be healthy for your daughter.Hugs to you.
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IRunOnFaith
Reg. Dec 2009
Posted 2018-11-09 9:56 AM (#7412845 - in reply to #7412803)
Subject: RE: OT-Human Kidney Troubles



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Chandler's Mom - 2018-11-08 6:41 PM
IRunOnFaith - 2018-11-08 1:50 PM
Nateracer - 2018-11-08 12:49 PM 99% sure ibuprofen is a kidney killer.  My grandma is in stage 3 kidney failure and they make her take tylenol for pain. 



Just a quick google search brought up this website.  It doesn't sound like coffee is terrible as long as drank in moderation. (like 1 - 2 cups per day.
https://www.kidney.org/newsletter/coffee-and-kidney-disease

 
Bear and I have had many health talks. He should see the post soon and comment when he can.



That's odd that they would prescribe me Ibuprofen if that is true? I told the doctor I had been taking it every few days for pain...   
 
So sorry you're going thru this--sending prayers your way

Thank you, I really appreciate it. 
I;ve never been "sick" persay I've always been fairly healthy so it was very odd to be in bed for a week. I didn't care for it one bit and neither did my little one. She went a bit stir crazy Lol 
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IRunOnFaith
Reg. Dec 2009
Posted 2018-11-09 9:57 AM (#7412847 - in reply to #7412805)
Subject: RE: OT-Human Kidney Troubles



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Southtxponygirl - 2018-11-08 6:48 PM Awww I'm sorry Tess that you have been sick and still hurting I hope that the Doctors can get you feeling right as soon as possible, I know its really hard on you when you have a small child to think about..  

Thanks Roxie. I appreciate you. 
 
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IRunOnFaith
Reg. Dec 2009
Posted 2018-11-09 10:01 AM (#7412848 - in reply to #7412811)
Subject: RE: OT-Human Kidney Troubles



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jake16 - 2018-11-08 7:37 PM Honestly,you need to see a kidney specialist.Im sorry this happened to you,but you do need to put yourself first right now,so you can be healthy for your daughter.Hugs to you.

My insurance says I need a referral to see a specialist so I've scheduled an appointment with the pcp that's listed on my insurance. I've had health insurance 5+ years and I had no idea who my pcp was. I've never had to really see a doctor before for things like this. 
I can tell you everything about my little one's team of doctors but I had to do some digging to find mine. Couldn't even remember my darn log in to my insurance website. Had to wait a few days for HR to log me in. BUT we will see how this whole referral thing goes since I've never seen a pcp before now.  
 
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Nateracer
Reg. Feb 2008
Posted 2018-11-12 9:19 AM (#7413041 - in reply to #7412763)
Subject: RE: OT-Human Kidney Troubles



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Man, can't believe none of the docs on here have responded, so bumping back up for you.  
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Southtxponygirl
Reg. Nov 2006
Posted 2018-11-12 10:10 AM (#7413046 - in reply to #7413041)
Subject: RE: OT-Human Kidney Troubles



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Nateracer - 2018-11-12 9:19 AM Man, can't believe none of the docs on here have responded, so bumping back up for you.  

How many Doctors is there on here, I didnt know we had more then one, the only one I know is Scott {Bear} I bet hes got alot going on and really I think its best to have a doctor visit then someone trying to answer a question over the internet that serious... So I offer a big fat hug to Tess  and I so hope shes feeling better and has a specialist lined out..
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oija
Reg. Feb 2012
Posted 2018-11-12 11:07 AM (#7413057 - in reply to #7412763)
Subject: RE: OT-Human Kidney Troubles



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Yup, I hope Bear responds. I am going to echo what some others are saying though. Ibuprofen is tough on kidneys. Cranberries are also good for kidneys and lots of water too. Though I think I read somewhere that guzzling water is actually hard on them and its better to drink it all day but slowly so as not to overwhelm them? My mom has type I diabetes and her kidneys are starting to cause her trouble. She almost never takes ibuprofen. I would be careful on caffeine and sodium too, anything that can build up in there. I agree that visiting a specialist is also a good idea. PCP means primary care physician; it's like your general family medicine doctor who makes referrals to the specialists but should have some idea of your general health to make those referrals, if that helps at all. I only see mine once a year for a physical and some blood tests.
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IRunOnFaith
Reg. Dec 2009
Posted 2018-11-12 12:05 PM (#7413065 - in reply to #7413046)
Subject: RE: OT-Human Kidney Troubles



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Southtxponygirl - 2018-11-12 10:10 AM
Nateracer - 2018-11-12 9:19 AM Man, can't believe none of the docs on here have responded, so bumping back up for you.  
How many Doctors is there on here, I didnt know we had more then one, the only one I know is Scott {Bear} I bet hes got alot going on and really I think its best to have a doctor visit then someone trying to answer a question over the internet that serious... So I offer a big fat hug to Tess  and I so hope shes feeling better and has a specialist lined out..

THANK YOU ROXIE!!!
Working on trying to get in to see the PCP listed on my insurance so he can request a specialist hopefully. He's a busy man this time of year it seems LOLequest a specialist
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IRunOnFaith
Reg. Dec 2009
Posted 2018-11-12 12:06 PM (#7413066 - in reply to #7413057)
Subject: RE: OT-Human Kidney Troubles



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oija - 2018-11-12 11:07 AM Yup, I hope Bear responds. I am going to echo what some others are saying though. Ibuprofen is tough on kidneys. Cranberries are also good for kidneys and lots of water too. Though I think I read somewhere that guzzling water is actually hard on them and its better to drink it all day but slowly so as not to overwhelm them? My mom has type I diabetes and her kidneys are starting to cause her trouble. She almost never takes ibuprofen. I would be careful on caffeine and sodium too, anything that can build up in there. I agree that visiting a specialist is also a good idea. PCP means primary care physician; it's like your general family medicine doctor who makes referrals to the specialists but should have some idea of your general health to make those referrals, if that helps at all. I only see mine once a year for a physical and some blood tests.

Thank you so much for your response. 
I will keep all this info in mind. Sure do miss my morning coffee tho... 
 
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Bear
Reg. Dec 2007
Posted 2018-11-12 4:09 PM (#7413101 - in reply to #7412763)
Subject: RE: OT-Human Kidney Troubles



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Sorry I missed this. Next time a PM would get my attention, because sometimes I quickly check in to see if there’s anything of interest.
A lot of days I don’t check in here. Things don’t move very quickly on BHW compared to a few years ago.

So, it sounds like you had an infection of your right kidney.
It’s really hard for me to make many helpful suggestions, without knowing more specifics. Are there any stones? Is there any “hydronephrosis” (dilated ureter and collecting system due to blockage)? Is there any other underlying kidney disease like poly cystic kidney disease or glomerulonephritis?
Are you diabetic? Have you been told what the cause of kidney failure is? What have you been told about the unaffected (left) kidney? Have you been told you have “reflux”? What is your creatinine?

If it is a matter of only the right kidney being effected, and if you end up completely losing the right kidney, assuming there isn’t anything wrong with the left kidney, chances are it won’t effect your life.
People donate kidneys all the time. The renal function is mildly effected at first, but the remaining kidney basically adjusts and the renal function normalizes in a short time. Quite a few healthy people are walking around without one kidney, and don’t even know it.
If you are in an accident and lose a kidney to trauma, the chances are your health will not be effected.

I don’t know the underlying cause of your pyeloneohritis (kidney infection), and it’s hard to say much more without knowing more facts. Since I don’t know more, it’s hard to comment on ibuprofen.
If you are otherwise healthy, short term use of ibuprofen at modest doses are pretty safe. Same with Tylenol.
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IRunOnFaith
Reg. Dec 2009
Posted 2018-11-13 8:55 AM (#7413138 - in reply to #7413101)
Subject: RE: OT-Human Kidney Troubles



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Bear - 2018-11-12 4:09 PM Sorry I missed this. Next time a PM would get my attention, because sometimes I quickly check in to see if there’s anything of interest. A lot of days I don’t check in here. Things don’t move very quickly on BHW compared to a few years ago. So, it sounds like you had an infection of your right kidney. It’s really hard for me to make many helpful suggestions, without knowing more specifics. Are there any stones? Is there any “hydronephrosis” (dilated ureter and collecting system due to blockage)? Is there any other underlying kidney disease like poly cystic kidney disease or glomerulonephritis? Are you diabetic? Have you been told what the cause of kidney failure is? What have you been told about the unaffected (left) kidney? Have you been told you have “reflux”? What is your creatinine? If it is a matter of only the right kidney being effected, and if you end up completely losing the right kidney, assuming there isn’t anything wrong with the left kidney, chances are it won’t effect your life. People donate kidneys all the time. The renal function is mildly effected at first, but the remaining kidney basically adjusts and the renal function normalizes in a short time. Quite a few healthy people are walking around without one kidney, and don’t even know it. If you are in an accident and lose a kidney to trauma, the chances are your health will not be effected. I don’t know the underlying cause of your pyeloneohritis (kidney infection), and it’s hard to say much more without knowing more facts. Since I don’t know more, it’s hard to comment on ibuprofen. If you are otherwise healthy, short term use of ibuprofen at modest doses are pretty safe. Same with Tylenol.

Thank you for responding Bear. You are right, it's not very interesting here compared to years ago. No worries for going incognito a few days :
No stones, no blockage. No known kidney disease or glomerulonephritis. I am hypoglycemic(sp?) so I have extremely low blood sugar but I'm not sure that matters?... I didn't really get much out of the doctor I saw as far as specifics go... He didn't tell me why it was failing just that it was. He told me my left kidney looked healthy but that's about all he said about it.
Reflux... I have acid reflux but I'm not sure that's what you are asking? 
The doctor hardly looked me in the eye and didn't ask me if I had any questions before he left the room so I didn't really get a chance to ask or answer any questions I had... 

 
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Bear
Reg. Dec 2007
Posted 2018-11-13 11:32 AM (#7413192 - in reply to #7412763)
Subject: RE: OT-Human Kidney Troubles



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I think you need to follow up with your doctor sooner than a few months. You need to write down some questions and get answers.
If you don’t write them down, you’ll likely forget some. Here’s some questions I would have, based on your remarks:
1.) He said your right kidney is “pretty much toast”. How does he know this? Recurrent kidney infections can lead to scarring and eventual failure, but most isolated cases of pyelonephritis in adults do not result in a kidney failing. That would be rare, if the infection was treated.
2.) You said you have anemia. You need to have that explained.
People don’t just get anemia out of the blue without some reason.
Why are you anemic? Are you losing blood somewhere? Do you have heavy periods? Is there blood in your stool? You need to have your stool tested for occult blood. What I’m getting at is there are potentially serious causes for anemia. Don’t just take iron and vitamins without having the causes looked into.
3.) What is your “creatinine”? That gives an idea of how much renal failure, if any, you have. They can estimate renal function from a simple blood test.
4.) The “reflux” I was referring to is something called “vessico-ureteral reflux” (VUR). It’s seen mostly in kids as a congenital condition, but it can also be seen in adults, sometimes because of bladder dysfunction. What happens is the urine abnormally goes up toward the kidney in the ureter when you void. The ureter can become increasingly dilated and urine just sits there stagnant. Anytime you have stagnant urine, infections can become increased, and that can involve the kidney itself (pyelonephritis). You can diagnose VUR with a simple X-ray where dye is placed in the bladder through a catheter. You are asked to push down and void. If urine is seen to reflux up the ureter, you have VUR. That can be corrected.
If you’ve only had one isolated kidney infection, you don’t necessarily need to have this test, but if you get recurrent infections you probably should have this done. Kidney stones can also cause a blockage in the ureter. That blockage of urine can lead to infection because again the urine is just sitting there and is a set up for infection. The combination of a stone blocking the ureter with infection can easily destroy a kidney, or even cause serious sepsis.
A CT scan will exclude this. The fact that you were having so much pain even after being on antibiotics would make me wonder if a CT should be done to rule out stones.

Coffee won’t hurt your kidneys. That’s a myth.

There, you have a start. I think the Mayo Clinic has a great web site for patients. They do an excellent job explaining things. Make it a habit of using this:
https://www.mayoclinic.org/diseases-conditions/vesicoureteral-reflux...

Edited by Bear 2018-11-13 11:34 AM
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IRunOnFaith
Reg. Dec 2009
Posted 2018-11-14 8:42 AM (#7413312 - in reply to #7413192)
Subject: RE: OT-Human Kidney Troubles



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Bear - 2018-11-13 11:32 AM I think you need to follow up with your doctor sooner than a few months. You need to write down some questions and get answers. If you don’t write them down, you’ll likely forget some. Here’s some questions I would have, based on your remarks: 1.) He said your right kidney is “pretty much toast”. How does he know this? Recurrent kidney infections can lead to scarring and eventual failure, but most isolated cases of pyelonephritis in adults do not result in a kidney failing. That would be rare, if the infection was treated. 2.) You said you have anemia. You need to have that explained. People don’t just get anemia out of the blue without some reason. Why are you anemic? Are you losing blood somewhere? Do you have heavy periods? Is there blood in your stool? You need to have your stool tested for occult blood. What I’m getting at is there are potentially serious causes for anemia. Don’t just take iron and vitamins without having the causes looked into. 3.) What is your “creatinine”? That gives an idea of how much renal failure, if any, you have. They can estimate renal function from a simple blood test. 4.) The “reflux” I was referring to is something called “vessico-ureteral reflux” (VUR). It’s seen mostly in kids as a congenital condition, but it can also be seen in adults, sometimes because of bladder dysfunction. What happens is the urine abnormally goes up toward the kidney in the ureter when you void. The ureter can become increasingly dilated and urine just sits there stagnant. Anytime you have stagnant urine, infections can become increased, and that can involve the kidney itself (pyelonephritis). You can diagnose VUR with a simple X-ray where dye is placed in the bladder through a catheter. You are asked to push down and void. If urine is seen to reflux up the ureter, you have VUR. That can be corrected. If you’ve only had one isolated kidney infection, you don’t necessarily need to have this test, but if you get recurrent infections you probably should have this done. Kidney stones can also cause a blockage in the ureter. That blockage of urine can lead to infection because again the urine is just sitting there and is a set up for infection. The combination of a stone blocking the ureter with infection can easily destroy a kidney, or even cause serious sepsis. A CT scan will exclude this. The fact that you were having so much pain even after being on antibiotics would make me wonder if a CT should be done to rule out stones. Coffee won’t hurt your kidneys. That’s a myth. There, you have a start. I think the Mayo Clinic has a great web site for patients. They do an excellent job explaining things. Make it a habit of using this: https://www.mayoclinic.org/diseases-conditions/vesicoureteral-reflux...
 Thank you so much Bear! I appreciate you !

Also, I could hug right now for the coffee statement. 
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Chandler's Mom
Reg. Jan 2015
Posted 2018-11-14 7:04 PM (#7413431 - in reply to #7413312)
Subject: RE: OT-Human Kidney Troubles



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IRunOnFaith - 2018-11-14 8:42 AM

Bear - 2018-11-13 11:32 AM I think you need to follow up with your doctor sooner than a few months. You need to write down some questions and get answers. If you don’t write them down, you’ll likely forget some. Here’s some questions I would have, based on your remarks: 1.) He said your right kidney is “pretty much toast”. How does he know this? Recurrent kidney infections can lead to scarring and eventual failure, but most isolated cases of pyelonephritis in adults do not result in a kidney failing. That would be rare, if the infection was treated. 2.) You said you have anemia. You need to have that explained. People don’t just get anemia out of the blue without some reason. Why are you anemic? Are you losing blood somewhere? Do you have heavy periods? Is there blood in your stool? You need to have your stool tested for occult blood. What I’m getting at is there are potentially serious causes for anemia. Don’t just take iron and vitamins without having the causes looked into. 3.) What is your “creatinine”? That gives an idea of how much renal failure, if any, you have. They can estimate renal function from a simple blood test. 4.) The “reflux” I was referring to is something called “vessico-ureteral reflux” (VUR). It’s seen mostly in kids as a congenital condition, but it can also be seen in adults, sometimes because of bladder dysfunction. What happens is the urine abnormally goes up toward the kidney in the ureter when you void. The ureter can become increasingly dilated and urine just sits there stagnant. Anytime you have stagnant urine, infections can become increased, and that can involve the kidney itself (pyelonephritis). You can diagnose VUR with a simple X-ray where dye is placed in the bladder through a catheter. You are asked to push down and void. If urine is seen to reflux up the ureter, you have VUR. That can be corrected. If you’ve only had one isolated kidney infection, you don’t necessarily need to have this test, but if you get recurrent infections you probably should have this done. Kidney stones can also cause a blockage in the ureter. That blockage of urine can lead to infection because again the urine is just sitting there and is a set up for infection. The combination of a stone blocking the ureter with infection can easily destroy a kidney, or even cause serious sepsis. A CT scan will exclude this. The fact that you were having so much pain even after being on antibiotics would make me wonder if a CT should be done to rule out stones. Coffee won’t hurt your kidneys. That’s a myth. There, you have a start. I think the Mayo Clinic has a great web site for patients. They do an excellent job explaining things. Make it a habit of using this: https://www.mayoclinic.org/diseases-conditions/vesicoureteral-reflux...
 Thank you so much Bear! I appreciate you !

Also, I could hug right now for the coffee statement. 

Are you feeling better? Other than that coffee thing of course
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