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 Max is Back
Posts: 6795
    
Location: Flat Rock,IL | Mother and father has to make a decison pretty soon. This is my dauthers boyfriend sister, who had the baby. I would tell more about what's going on, but want to get permission first.
Edited by Kcaughran 2014-03-29 1:29 PM
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Max is Back
Posts: 6795
Location: Flat Rock,IL |
My son-in-law has shared the following information concerning our precious little Wyatt's condition so I feel comfortable sharing this same information publicly instead of bits and pieces privately. Here is what he has shared...please keep little Wyatt in your thoughts and prayers.
Wyatt Status Update:
Little Wyatt is 2 days old & was moved yesterday from UofU newborn ICU to Primary Children's Cardiac ICU, during which he met his brother, Dakota, for the first time.
Heart Status: tetralogy Fallot, he has a ventricle septal defect (hole between heart chambers) as well as pulmonary atresia (not fully developed pulmonary stem/valve to pulmonary artery, feeds blood to lungs for oxygenation). Overall, his heart is strong & with the prostaglandin he is breathing room air and oxygenation levels are in the 80-90s range (great for his condition).
Brain Status: he had an MRI yesterday of which we received the results today. Basically confirmed what we knew already, but did not provide a specific prognosis. Cortical dysplasia, with polymicrogyria. Essentially his frontal & temporal lobes development is abnormal with smoothness & many tiny waves (not smooth brain syndrome); there is a wide array for prognosis. Additionally the small bleed that occurred early on in pregnancy is considered insignificant & most likely as his brain further develops will disappear after a year. Additionally, his brain stem is well formed so that is also positive in this case.
He also has a clubbed left foot.
At this time we are completing genetic testing to help provide as accurate prognosis as possible to help us determine our next steps. We essentially have two options at this point & both are difficult at this time, but we have at least 2 weeks to make a decision... First, to have open heart surgery & temporary shunt placed as a bypass for his heart to allow proper oxygenation of his blood until he is older & more stable (6-8 months of age) when we'd have to complete a second open heart surgery to remove shunt & repair/replace the pulmonary stem/valve & hole in his heart. The second option is to do nothing & enjoy our few weeks with our little man. We are hoping all the testing going on will allow us to make the most informed & proper decision for Wyatt & our family.
We want Wyatt to have a good quality of life whichever outcome plays out. Life is never fair, but that is life. Thank you all for your support, prayers & blessings during this challenging time. — with Melissa Beulin
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Married to a Louie Lover
Posts: 3303
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 A Somebody to Everybody
Posts: 41354
Location: Under The Big Sky Of Texas | Oh no many prayers for this baby boy,,  |
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  Neat Freak
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Location: Wonderful Wyoming | many many prayers for baby and his family! |
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 Total Germophobe
Posts: 6443
Location: Montana | Many prayers. |
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 Angel in a Sorrel Coat
Posts: 16030
Location: In a happy place | Dear Heavenly Father we ask that you wrap this family in your loving arms and give guidance and comfort as they face their upcoming days with baby Wyatt. Lead Wyatt's doctors in knowing how to best take care of him. And lastly send angels to be next to Wyatt and his loving family. We thank you for our daily gifts we recieve from you. Amen |
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Location: EDGE OF INSANITY |  |
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Location: Texas | Prayers for baby Wyatt |
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A Somebody to Everybody
Posts: 41354
Location: Under The Big Sky Of Texas | sorrel horse ranch - 2014-03-29 2:22 PM
Dear Heavenly Father we ask that you wrap this family in your loving arms and give guidance and comfort as they face their upcoming days with baby Wyatt. Lead Wyatt's doctors in knowing how to best take care of him. And lastly send angels to be next to Wyatt and his loving family. We thank you for our daily gifts we recieve from you. Amen
Amen |
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Location: bring on the heat, NV | praying |
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 Wide Darn Open
Posts: 2141
| sorrel horse ranch - 2014-03-29 2:22 PM Dear Heavenly Father we ask that you wrap this family in your loving arms and give guidance and comfort as they face their upcoming days with baby Wyatt. Lead Wyatt's doctors in knowing how to best take care of him. And lastly send angels to be next to Wyatt and his loving family. We thank you for our daily gifts we recieve from you. Amen
Amen! |
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 Extreme Veteran
Posts: 468
Location: Crazy House | I have no answers but I do have prayers. Plenty of them for this baby boy and his family. What ever the choice you all make may the Good Lord be there holding your hand and heart. Please keep us updated on this baby and family. |
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 I Am Always Right
Posts: 4264
Location: stray dump capital of the world | |
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Common Sense and then some
Location: So. California | Prayers and many hugs to this young family. |
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The Resident Destroyer of Liberal Logic
Location: PNW | sorrel horse ranch - 2014-03-29 2:22 PM
Dear Heavenly Father we ask that you wrap this family in your loving arms and give guidance and comfort as they face their upcoming days with baby Wyatt. Lead Wyatt's doctors in knowing how to best take care of him. And lastly send angels to be next to Wyatt and his loving family. We thank you for our daily gifts we recieve from you. Amen
Amen |
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 More bootie than waist!
Posts: 18425
Location: Riding Crackhead. | Many prayers for this beautiful little boy that God created. My heart breaks for him and his family. |
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 Quiet Riot
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Location: North Dakota | |
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 Crazy Chicken Chick
Posts: 36132
| Many prayers for baby Wyatt! I sure do feel for them being in such a difficult position. I work in L&D and at a hospital with a level 3 NICU so we get moms and babies from 32 counties and it always breaks my heart when I hear parents having to made such difficult decisions. |
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![](<a href="http://s1191.photobucket.com/albums/z470/alicat0909/?action=view¤t=yellaandcalf.jpg" target="_blank"><img src="http://i1191.photobu) Heeler Hater
Posts: 3014
Location: Texas | many prayers
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Max is Back
Posts: 6795
Location: Flat Rock,IL | Picture of little Wyatt.
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Max is Back
Posts: 6795
Location: Flat Rock,IL | Updating Wyatt's status...
Bryan has shared the following:
Thank you for the outpouring of support, thoughts & prayers from all our friends & family at this difficult time.
Baby Wyatt is not doing the greatest. We have a comfort care conference with all his medical staff today to get everyone in one room & a consensus of his prognosis as well as help to determine our next steps. Will update once we know more from that. |
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 Elite Veteran
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Location: Southwest Minnesota | Lots of prayers for everyone... |
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 Damn Yankee
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Location: Somewhere between raising hell and Amazing Grace | |
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Posts: 1898
| for little Wyatt from California.
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Angel in a Sorrel Coat
Posts: 16030
Location: In a happy place | Continued prayers. |
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 Water Weight Barbie
Posts: 6829
Location: Oz, Kansas | Many prayers for baby Wyatt & his family. I'm surprised some of this wasn't caught during her prenatal exams. My niece is having her baby today & he will be born with Gastroschisis & they found it early on in her pregnancy. |
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 Road Rash Expert
Posts: 5501
Location: Near San Antonio, TX | Prayers for baby Wyatt and his family. |
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Max is Back
Posts: 6795
Location: Flat Rock,IL | lookout hill - 2014-04-01 1:10 PM
Many prayers for baby Wyatt & his family. I'm surprised some of this wasn't caught during her prenatal exams. My niece is having her baby today & he will be born with Gastroschisis & they found it early on in her pregnancy.
All i know is, her mother was asking for prayers before baby Wyatt was born.They did know something was wrong, but i've not ask when they did know. |
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 Looking for Lady Jockey
Posts: 3747
Location: Rodeos or Baseball games | Southtxponygirl - 2014-03-29 3:06 PM
sorrel horse ranch - 2014-03-29 2:22 PM
Dear Heavenly Father we ask that you wrap this family in your loving arms and give guidance and comfort as they face their upcoming days with baby Wyatt. Lead Wyatt's doctors in knowing how to best take care of him. And lastly send angels to be next to Wyatt and his loving family. We thank you for our daily gifts we recieve from you. Amen
Amen
Amen |
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 Extreme Veteran
Posts: 352
Location: Texas | Many prayers for baby Wyatt and his family. |
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 Reaching for the stars....
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 Undercover Amish Mafia Member
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A Somebody to Everybody
Posts: 41354
Location: Under The Big Sky Of Texas | Kcaughran - 2014-03-29 9:43 PM
Picture of little Wyatt.
Sending more prayers for this beautiful baby |
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 Namesless in BHW
Posts: 10368
Location: At the race track with Ah Dee Ohs | Many, many prayers for baby Wyatt and his family. |
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Water Weight Barbie
Posts: 6829
Location: Oz, Kansas | Kcaughran - 2014-04-01 12:44 PM lookout hill - 2014-04-01 1:10 PM Many prayers for baby Wyatt & his family. I'm surprised some of this wasn't caught during her prenatal exams. My niece is having her baby today & he will be born with Gastroschisis & they found it early on in her pregnancy. All i know is, her mother was asking for prayers before baby Wyatt was born.They did know something was wrong, but i've not ask when they did know.
I couldn't even imagine the pain they must be feeling. My niece has been in a constant state of panic ever since she found out her baby had an issue. |
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Max is Back
Posts: 6795
Location: Flat Rock,IL | lookout hill - 2014-04-01 4:20 PM
Kcaughran - 2014-04-01 12:44 PM lookout hill - 2014-04-01 1:10 PM Many prayers for baby Wyatt & his family. I'm surprised some of this wasn't caught during her prenatal exams. My niece is having her baby today & he will be born with Gastroschisis & they found it early on in her pregnancy. All i know is, her mother was asking for prayers before baby Wyatt was born.They did know something was wrong, but i've not ask when they did know.
Prayers for her too and baby. |
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Max is Back
Posts: 6795
Location: Flat Rock,IL | Things are looking more positive this afternoon.... Bryan and Melissa met with Wyatt's specialists and things have improved some. Thank you everyone for your thoughts and prayers....please keep them coming
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 Expert
Posts: 1218
Location: Great NW | Prayers for all |
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Max is Back
Posts: 6795
Location: Flat Rock,IL | Look who's home!! No tubes or wires attached and ready to love
His mama dressed him in the same little gown she and her two brothers and Dakota wore home from the hospital. It's wearing thin...lol. — feeling blessed and sentimental. ...They have decided to bring him home and let God take it from there. Thanks for all the prayers for little Wyatt.
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Wide Darn Open
Posts: 2141
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Expert
Posts: 1898
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Angel in a Sorrel Coat
Posts: 16030
Location: In a happy place | Prayers for Wyatt. |
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 Fact Checker
Posts: 16575
Location: Displaced Iowegian | He is a "sweetie".......many prayers...... |
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 That's White "Man" to You
Posts: 5515
| Cute Kid, Glad things are going better. |
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A Somebody to Everybody
Posts: 41354
Location: Under The Big Sky Of Texas | That is so awesome that he's home with his family, I think that this is the best medicine for him, home is where the heart is 
Edited by Southtxponygirl 2014-04-11 5:35 PM
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Max is Back
Posts: 6795
Location: Flat Rock,IL | So far he his still doing good...thanks for the prayers
Edited by Kcaughran 2014-04-11 12:57 PM
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Posts: 174
| What a beautiful Baby. Saying a prayer for the family. |
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Elite Veteran
Posts: 738
Location: Anywhere my horses are ! Lost in Texas!!!!! | Many prayers for Wyatt |
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A Somebody to Everybody
Posts: 41354
Location: Under The Big Sky Of Texas | Kcaughran - 2014-04-11 12:56 PM So far he his still doing good...thanks for the prayers
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Namesless in BHW
Posts: 10368
Location: At the race track with Ah Dee Ohs | Kcaughran - 2014-04-11 12:56 PM So far he his still doing good...thanks for the prayers
Continued prayers |
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Max is Back
Posts: 6795
Location: Flat Rock,IL | Status Update
By Bryan Beulin
Happy One Month Birthday Baby Wyatt!!! And to think the doctors didn't give you a week after we brought you home. ?#?ExceedingExpectations? ?#?Thriving
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The Resident Destroyer of Liberal Logic
Location: PNW | Kcaughran - 2014-04-26 10:36 PM
Status Update
By Bryan Beulin
Happy One Month Birthday Baby Wyatt!!! And to think the doctors didn't give you a week after we brought you home. ?#?ExceedingExpectations? ?#?Thriving
God is so good
SO happy to hear this. Is there anything new for the prognosis? |
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Namesless in BHW
Posts: 10368
Location: At the race track with Ah Dee Ohs | So glad to hear baby Wyatt is doing well. |
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Max is Back
Posts: 6795
Location: Flat Rock,IL | svincent - 2014-04-26 10:41 PM
Kcaughran - 2014-04-26 10:36 PM
Status Update
By Bryan Beulin
Happy One Month Birthday Baby Wyatt!!! And to think the doctors didn't give you a week after we brought you home. ?#?ExceedingExpectations? ?#?Thriving
God is so good
SO happy to hear this. Is there anything new for the prognosis?
Yes, God is good!...Don't know anything different with prognosis yet. |
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Max is Back
Posts: 6795
Location: Flat Rock,IL | Hospice came to see baby Wyatt today....he's gained some weight ~ now 6#14oz ~ and his oxygen level came up some. Even though his prognosis is the same the good news makes me happy! Still praying for a miracle!
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A Somebody to Everybody
Posts: 41354
Location: Under The Big Sky Of Texas | Kcaughran - 2014-04-30 11:06 PM Hospice came to see baby Wyatt today....he's gained some weight ~ now 6#14oz ~ and his oxygen level came up some. Even though his prognosis is the same the good news makes me happy! Still praying for a miracle!
Praying with you |
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Common Sense and then some
Location: So. California | Sending prayers for that precious little one. |
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 If it Ain't a Paint it Ain't!
Posts: 8519
Location: Mansfield, Tx | |
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Sideways Riding Expert
Posts: 11371
Location: ND--it snows, it floods, it snows, it floods | Prayers for little Wyatt! |
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Hungarian Midget Woman
Location: Midwest | Have they pursued genetic testing? I would HIGHLY recommend contacting a Pediatric Genetic Specialist and speaking with the hospital's genetic counselor regarding Chromosome analysis study, or a better option would be Microarray studies. They may be able to help determine what exactly is going on , and the best way to proceed.
Best of luck in the tough tough situation. Prayers for the baby, and I am happy to see a good update! |
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Max is Back
Posts: 6795
Location: Flat Rock,IL | barrelracr131 - 2014-05-01 12:57 PM
Have they pursued genetic testing? I would HIGHLY recommend contacting a Pediatric Genetic Specialist and speaking with the hospital's genetic counselor regarding Chromosome analysis study, or a better option would be Microarray studies. They may be able to help determine what exactly is going on , and the best way to proceed.
Best of luck in the tough tough situation. Prayers for the baby, and I am happy to see a good update!
I don't know all the testing they have done. The last report before this one was, he was not gaining any weight for about 3 weeks, but he had good appeitte. |
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Hungarian Midget Woman
Location: Midwest | I am not a doctor- but I do work in a medical lab doing genetic testing. We test a lot of newborns with similar problems, so it might be worth looking into for the family. The tests can also determine if this is heriditary from the parents, in case they plan on having more kids. It can also give the parents a "diagnosis" so they may know what to do in the future, or how similar cases are handled by doctors. Just throwing this option out there for you since I am sort of familiar with this area of medicine (the genetics).
If you have any questions, feel free to PM me. I am glad the baby is doing better and I wish them all the best. :) |
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Max is Back
Posts: 6795
Location: Flat Rock,IL | barrelracr131 - 2014-05-01 1:34 PM
I am not a doctor- but I do work in a medical lab doing genetic testing. We test a lot of newborns with similar problems, so it might be worth looking into for the family. The tests can also determine if this is heriditary from the parents, in case they plan on having more kids. It can also give the parents a "diagnosis" so they may know what to do in the future, or how similar cases are handled by doctors. Just throwing this option out there for you since I am sort of familiar with this area of medicine (the genetics).
If you have any questions, feel free to PM me. I am glad the baby is doing better and I wish them all the best. :)
He does a two year brother, he is healthy. |
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