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 Extreme Veteran
Posts: 392
 
Location: CA | http://www.gofundme.com/vs4v5n8w
I am sharing this link with everyone here at barrel horse world because I have seen this boards strength and generosity in times of need. About three weeks ago my little cousin Chanel was diagnosed with stage 4 glioblastoma brain cancer. It has spread to much so surgery is not at option at this time. She was given a very grim prognosis. My family is just broken hearing the news and praying for a miracle. if anyone can spare a few dollars, a prayer or even just a share on their social media sight we would be forever grateful!
Here is the first update her god mother posted to the go fund me site:
Chanel was admitted into Children's Hospital in Oakland on May 16th, 2015 around 4am. She was having seizures and her right side was not moving. She had swelling of the brain on the left side and blood on the right. She was scheduled for a Spinal Tap but due to the swelling of the brain they were unable to perform that procedure. On May 22nd they took a Biopsy which the Doctor stated her tissue was abnormal. Meanwhile awaiting her results, Chanel was still having seizures. On May 27th, Heather & Gerard got the worse news ever...Chanel was diagnosed with Glioblastoma Tumor Stage 4. With Chemotherapy and Radiation treatment she has a 20% chance of shrinking the Tumor and enjoying more of her precious beautiful life. Heather and Gerard are seeking other treatments and getting more opinions. They however have found a Doctor that has a clinic that specializes in Glioblastoma in Florida. Please send all your love and prayers for Chanel and her health. Any dontation to this family will be greatly apprecitated. |
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 A Gopher's Worst Nightmare
Posts: 5094
Location: Southern Oregon | Many prayers for your cousin and your family.  I lost a VERY close sister type figure in my life to the same thing when I was 15. It's heart breaking |
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 Elite Veteran
Posts: 600
Location: Oklahoma & Texas | Sending hugs and prayers |
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 Balance Beam and more...
Posts: 11511
Location: 31 lengths farms | I'm not sure but is the this the type of brain cancer that Duke University has been doing some great trials with? |
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 Accident Prone
Posts: 22277
Location: 100 miles from Nowhere, AR | Prayer for your cousin. |
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Extreme Veteran
Posts: 392
Location: CA | run n rate - 2015-06-06 8:21 AM I'm not sure but is the this the type of brain cancer that Duke University has been doing some great trials with?
I'm not sure I just looked at the website for Dukes study. I will forward that to my Cousin Heather, chanels mother.
Any thank you for the prayers! They are appreciated. |
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Balance Beam and more...
Posts: 11511
Location: 31 lengths farms | We just watched a piece on 60 Minutes like maybe 2 weeks ago. They are injecting the brain tumor with a genetically modified Polio vaccine, it makes the body recognize the tumor as something it needs to fight. Apparently tumors build a "shield" of sorts so that the body's immune system doesn't recognize it as needing to be attacked. Highly successful rate of treatment on a very deadly type of cancer. Prayers being sent !!!
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 Namesless in BHW
Posts: 10368
Location: At the race track with Ah Dee Ohs | Many prayers for your entire family. Have they tried to contact St. Jude's? |
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Extreme Veteran
Posts: 392
Location: CA | total performance - 2015-06-06 9:16 AM Many prayers for your entire family. Have they tried to contact St. Jude's?
From everything I have heard only 3% of childhood brain tumors are glioblastomas, and regular courses of chemo or radiation have very low success rates. I believe st judes and most regualr childrens hospitals are not equipped to provide any alternative or new therapies, and at this point that is her only hope to prolong her little life while still keeping up her quality of life. they are looking into a few different treamtent centers all over the country at the moment but they ahvent made any decisions yet.
When she was admitted to the hospital at first they though she had a virus that was making her brain swell so they put her on anti-virals and steroids among other medicines to stabilize her condition and stop the seizures. Right now she is coming off of the unnecessary meds and has some symptoms that could be the tumor, or the withdrawls from the meds. While they research where to take her they have put her on a all natural balanced diet so they can hopefully get her as strong as possible before treatment and so they can figure out what is causing each sympotom.
She is on a medication now that seems to be controlling the seizures, and besides it making her sick at times she is her normal lively sweet self. She received first communion early from the church she was baptisted in as a baby last sunday. It was very touching, and great to see her feeling better. Seeing her Sunday it was hard to believe she is battling such a terrible disease. She looked like any other healthy 7 year old girl. |
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Extreme Veteran
Posts: 428
Location: God's country | Very sorry to hear this! Cancer is a horrible disease and heartbreaking to affect one so young. Will definitely be in prayer for this precious child |
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 Expert
Posts: 1304
| Praying |
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 A Somebody to Everybody
Posts: 41354
Location: Under The Big Sky Of Texas | Prayers |
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  Angel in a Sorrel Coat
Posts: 16030
Location: In a happy place | Prayers. |
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 Take a Picture
Posts: 12841
| First of all, many prayers. St Jude's uses cutting edge technology which they share with other hospitals around the world. I do not think there is any place better to take her. |
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Extreme Veteran
Posts: 392
Location: CA | streakysox - 2015-06-06 10:34 PM
First of all, many prayers. St Jude's uses cutting edge technology which they share with other hospitals around the world. I do not think there is any place better to take her.
Thank you for the prayers everyone!
My cousin Heather has spoken with st judes and they dont have any glioblastoma trials that would apply to Chanel. I know she has been in contact with different glioblastoma specialists through out the country. Ucsf, oakland childrens hospital and st judes have chemo and radiation treatments but the odds are not good. They were originally quoted a 20% chance she will survive 18 months with treatment. |
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Balance Beam and more...
Posts: 11511
Location: 31 lengths farms | WAs the one at Duke for this type of cancer? It just really stuck in my head for some reason when we watched it.... |
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 Elite Veteran
Posts: 929
| I am so sorry. That is just so sad. Many prayers for your family. |
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 Undercover Amish Mafia Member
Posts: 9992
Location: Kansas | |
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Extreme Veteran
Posts: 392
Location: CA | run n rate - 2015-06-08 2:01 PM
WAs the one at Duke for this type of cancer? It just really stuck in my head for some reason when we watched it....
Its for the same type of cancer but it must be recurrent and have been treated previously with conventional mehods. The patient also has to he 18 to qualify for the trial. I did send her the link to the duke website. |
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Balance Beam and more...
Posts: 11511
Location: 31 lengths farms | OMG, that is BS!!!! ARGGG!!!! |
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Go Get Em!
Posts: 13503
Location: OH. IO | Many prayers for this sweet young girl and her family.I just cant imagine what they are feeling. |
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Common Sense and then some
Location: So. California | Prayers...
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Regular
Posts: 60
| A coworker of mine has the same type of brain tumor. I am sorry. Many many prayers! |
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 Shelter Dog Lover
Posts: 10277
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Please help! cousin has inoperable brain tumor