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 Max is Back
Posts: 6795
    
Location: Flat Rock,IL |
Joan Candee
46 mins · Fallon, NV ·
BEST NEWS EVER!!!!!!
My little grandson Wyatt has been taken off hospice care!!!!!
We are one thankful, happy family....keep on praying!
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  Living on the edge of common sense
Posts: 24138
Location: Carpenter, WY |  
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Max is Back
Posts: 6795
Location: Flat Rock,IL | I hope this picture will show up.
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Max is Back
Posts: 6795
Location: Flat Rock,IL | Kcaughran - 2014-08-06 7:20 PM
I hope this picture will show up.
Picture was taken before he had heart surgery. |
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 A Somebody to Everybody
Posts: 41354
Location: Under The Big Sky Of Texas | This is really good news Wyatt  , I'm doing the happy dance for you tonight,....
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 Fact Checker
Posts: 16575
Location: Displaced Iowegian | WORK................ 
Edited by NJJ 2014-08-06 8:32 PM
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 Dancing in my Mind
Posts: 3062
Location: Eastern OH but my heart is in WV | AWESOME, WONDERFUL, GREAT, GOD IS GOOD |
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Max is Back
Posts: 6795
Location: Flat Rock,IL |
All the time!
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I just read the headlines
Posts: 4483
| That's great! He is a handsome boy! I will keep him in my prayers for sure. |
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The Resident Destroyer of Liberal Logic
Location: PNW | Oh God is GOOD! This post made me cry! Baby Wyatt, you keep fighting hard!! |
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Max is Back
Posts: 6795
Location: Flat Rock,IL | My son-in-law has shared the following information concerning our precious little Wyatt's condition so I feel comfortable sharing this same information publicly instead of bits and pieces privately. Here is what he has shared...please keep little Wyatt in your thoughts and prayers.
Wyatt Status Update:
Little Wyatt is 2 days old & was moved yesterday from UofU newborn ICU to Primary Children's Cardiac ICU, during which he met his brother, Dakota, for the first time.
Heart Status: tetralogy Fallot, he has a ventricle septal defect (hole between heart chambers) as well as pulmonary atresia (not fully developed pulmonary stem/valve to pulmonary artery, feeds blood to lungs for oxygenation). Overall, his heart is strong & with the prostaglandin he is breathing room air and oxygenation levels are in the 80-90s range (great for his condition).
Brain Status: he had an MRI yesterday of which we received the results today. Basically confirmed what we knew already, but did not provide a specific prognosis. Cortical dysplasia, with polymicrogyria. Essentially his frontal & temporal lobes development is abnormal with smoothness & many tiny waves (not smooth brain syndrome); there is a wide array for prognosis. Additionally the small bleed that occurred early on in pregnancy is considered insignificant & most likely as his brain further develops will disappear after a year. Additionally, his brain stem is well formed so that is also positive in this case.
He also has a clubbed left foot.
At this time we are completing genetic testing to help provide as accurate prognosis as possible to help us determine our next steps. We essentially have two options at this point & both are difficult at this time, but we have at least 2 weeks to make a decision... First, to have open heart surgery & temporary shunt placed as a bypass for his heart to allow proper oxygenation of his blood until he is older & more stable (6-8 months of age) when we'd have to complete a second open heart surgery to remove shunt & repair/replace the pulmonary stem/valve & hole in his heart. The second option is to do nothing & enjoy our few weeks with our little man. We are hoping all the testing going on will allow us to make the most informed & proper decision for Wyatt & our family.
We want Wyatt to have a good quality of life whichever outcome plays out. Life is never fair, but that is life. Thank you all for your support, prayers & blessings during this challenging time. — with Melissa Beulin |
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 Looking for Lady Jockey
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Location: Rodeos or Baseball games | |
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 Angel in a Sorrel Coat
Posts: 16030
Location: In a happy place | |
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Expert
Posts: 5321
Location: Texas | So happy for baby Wyatt and family!!!! GOD is great all the time! |
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 Elite Veteran
Posts: 887
Location: MN | Amazing!! |
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Max is Back
Posts: 6795
Location: Flat Rock,IL | Another picture, after his heart surgery. |
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Max is Back
Posts: 6795
Location: Flat Rock,IL | Kcaughran - 2014-08-07 7:59 PM
Another picture, after his heart surgery.
https://www.facebook.com/photo.php?fbid=10204264016030313&set=a.1711... |
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A Somebody to Everybody
Posts: 41354
Location: Under The Big Sky Of Texas | |
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Max is Back
Posts: 6795
Location: Flat Rock,IL | Southtxponygirl - 2014-08-07 8:27 PM
Sorry, I've been trying to learn on my mom's IPAD, I'm getting better at it. |
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Folks on-line