|
|
Sock Snob
Posts: 3021
 
| I am a well controled diabetic, so i know what is good for me to eat. |
|
| |
|
 Expert
Posts: 1410
Location: Peach State | Not trying to hijack this thread but I too have been wanting some info from ppl with thyroid problems...So my husband went to the doc after getting bit by several ticks, tested for Rocky Mountain spotted fever, Lyme and bmp along with thyroid panel.
RMSF came back past positive exposure(went ahead did a round of antibiotics), tsh high and postive TPO. So off to endocrine we went where they diagnosed him with hypo thyroidism and hashimotos and he was started on levothyroxine but is still having muscle pains/tightness, brain fog and fatigue is that typical for hashimotos after starting treatment???
Btw his follow up is next week so obviously we will talk to a dr then just wanted some input from people who have experience |
|
| |
|
Sock Snob
Posts: 3021
| All of us in lyme areas been exposed to those ticks. I have read dont know how true the lyme test is not reliable. Just wonder some of us that just dont feel right about this.
|
|
| |
|
 Regular
Posts: 55
Location: Middle TN | I have been Hypo since birth. I was born with a goiter and completely inactive thyroid glands. I was started on Synthroid at around 24 hours old. When I was 13 my goiter had enlarged to the point of concern for blocking my airways. An US was performed and showed numerous nodules. They went in and did a complete thyroidectomy. Nodules were benign (thank goodness). I have remained on Synthroid since that time.
In relation to your post: I would request more in depth testing. TSH itself is NOT adequate in determining method of treatment. Many providers/practitioners, even Endos, base treatment solely on TSH and may add additional Free t3, T4 but almost alwasy base their decisions on TSH. NOT ALL BUT MOST are like this. If your provider is, and denies requests for further testing, get a new provider. I have dealt with this long enough that I no longer have ANY tolerance for mediocre providers. As a pediatric patient I had the best of the best Endo pediatric team at the time, highly recommended all over the country (Vanderbilt). Which is why my family moved here.
Since I was released from the pediatric Endocrinologist and sent on my way to adult life, finding my own providers, I have had some real doozies. Some have led me to circumstances that absolutely could have been avoided if they actually listened. My most recent Endo, doesn't even have me listed as Congenital Hypo, only post surgical. It was as if I didn't have a hypo history before my thyroidectomy. Ignores my requests to look beyond my thyroidectomy. This Endo is most certainly not for me.
I am currently looking into holistic/naturopathic providers. If you haven't already I would recommend checking out "Stop the thyroid madness" there are books, websites, and FB pages dedicated to thyroid patients looking for answers. It explains correlations between thyroid, adrenal, hormones, etc. I have come across several topics that have helped me and answered many questions.
Good luck to you on your Thyroid journey! Keep us updated on what you find out (: |
|
| |
|
 Experienced Mouse Trapper
Posts: 3106
Location: North Dakota | I have no luck getting a doc to go any deeper than t3 and TSH testing-I'm in range-even if it is low in range so, once again-I sit and read these threads.
HOWEVER, I want to mention to those of you that are struggling with fatigue and maybe some slight depression to have your vitamin d levels checked. I suffer from seasonal Bit&$%iness when I do not properly take my vitamin d.
Also I stumbled across the Curost adapt and calm for humans-I ONLY take it about an hour before I go to bed and it really does help with sleeping soundly. I only take about a half a dose as well. |
|
| |
|
SHOOT IT
Posts: 1170
Location: TEXAS | I went to someone that went beyond the typical t3 and TSH testing. She had me do a saliva test and found all sorts of things wrong with my system/body. Any doctor can do it but most just want to do blood tests. You just have to find the doctor that best meets your needs. The person that I went to was actually a Nurse Practitioner, not considered and actual 'doctor' and insurance didn't pay for it. Each visit was $200+, so I finally had to quit going because it just got to be too expensive. Anyway, she had me taking so many different things (vitamins and stuff) that my body was lacking (according to the saliva results), I couldn't keep up with all of it. At the end of the day, did I feel better.... NO and neither did my wallet. Bottom line, there is no easy answer to finding a solution that really works when you have thyroid issues. I've struggled with thyroid issues most of my life. Each and every person is different in how their body reacts to medication and each and every doctor is different in what they perscribe. JMO. |
|
| |
|
Sock Snob
Posts: 3021
| Bump
|
|
| |
|
Sock Snob
Posts: 3021
| Up intel last year my internist let me be slighty low normal chamged docs amd get my levels up had several test like every 3-4 momths staying in good range now slightly higher level now. Was on generic synthryoid maybe got a batch that was a little stronger. Will get her to retest.
|
|
| |
|
Regular
Posts: 55
Location: Middle TN | daisycake123 - 2015-11-14 6:37 AM
Up intel last year my internist let me be slighty low normal chamged docs amd get my levels up had several test like every 3-4 momths staying in good range now slightly higher level now. Was on generic synthryoid maybe got a batch that was a little stronger. Will get her to retest.
Have you gotten to try name brand Synthroid? If you have tried and "failed" generic, it should be no problem to get the brand name. The generic was NEVER effective for me. Supposedly its the exact same thing according to some docs BUT obviously there's a reason both are available. Maybe it's worth a try for you? Also maybe look into Natural Dissected Thyroid. |
|
| |
Folks on-line