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Chest Wall Tumor (human)

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Last activity 2014-01-22 3:42 PM
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Whiteboy
Reg. Jul 2012
Posted 2014-01-22 1:09 PM
Subject: Chest Wall Tumor (human)


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Anybody ever dealt with one of these?  I'd like to know your experiences and treatment. Thank you!


Edited by Whiteboy 2014-01-22 1:10 PM
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azsun
Reg. Jun 2006
Posted 2014-01-22 2:01 PM
Subject: RE: Chest Wall Tumor (human)


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Posts: 2600
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My friend has a chest wall tumor. She also has tumors in her legs and lungs. She found a tumor in her leg many years ago. It was removed and they told her it was benign. A few months back, she felt a lump in her chest above her breast. It was very small, about the size of a bean when she noticed it. She had it removed, it was a cancerous. It was a awful because they took forever to get the results back. I'm not talking two weeks, more like months … they had to send it off and resend it off. Meanwhile she discovered new tumors in her leg (same spot as before) and then a scan discovered them in her lungs. She went through two tough and aggressive rounds of chemotherapy and radiation. When I say tough, I mean 8 hours a day, 5 days a week for 10 days of chemo and radiation that burned her leg. SHe said she was the first patient to arrive in the morning and the last one to leave in the evening. Her leg seems to be the focal point for the radiation. She has taken everything in stride and her attitude is amazing. She says, she is going to fight fight fight (and she has). THey are going to try to remove the tumor in her leg but it had to shrink (thus the radiation) because it was near an artery. If it doesn't shrink enough, they will amputate her leg. She says, she doesn't care, she would rather live. Her son is 10 years old and she wants to see him grow up, so they can take whatever they need to keep her alive. She's been fighting since about June of last year.

She didn't lose any hair until fairly recently. In fact, she didn't tell her son until her hair started falling out what was happening. So she had her son be part of everything and he got to shave her head and tried to make it a positive "lets fight this together" type situation. She hasn't gotten skinny and frail. In fact, she looks good (other than the hair loss) She doesn't work … she had to quit and can generally take care of her home, with some help, if she paces herself. From time to time, we will take turns cooking dinner for the family, especially when she was in chemo. But it isn't as frequent as she has adjusted.

I bought her a Pittsburgh Steelers cap and she wears it all the time. What's hard for me as her friend isn't the hair loss (she had beautiful hair) but the loss of her long eye lashes. She just says, she doesn't care … she wants to live.

Her immune system is bad and she has to watch herself very carefully. She's been admitted to the hospital a couple of times due to a sore throat that was so painful and she had to be placed on heavy antibiotics and painkillers so she could get some rest to build her strength.

I don't know if that's the kind of information you were looking for, but its what I could offer as an observer. Her attitude seems to have played a tremendous role in her fight. I hope that whomever is having to deal with this takes on the same attitude. I think its helped her. I know its helped me when watching her. I understand some of the things she says about it.
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triangle4
Reg. Feb 2008
Posted 2014-01-22 2:16 PM
Subject: RE: Chest Wall Tumor (human)


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Location: Nebraska
Have a co-worker who's brother in law recently had a large tumor attached to his breast plate nearly all the away across his chest including collar bones. the treatment they decided on was to completely remove the tumor along with any bones it was attached to....the bones were then replaced with cadaver bones. He is still recovering but there are options out there!
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Whiteboy
Reg. Jul 2012
Posted 2014-01-22 2:34 PM
Subject: RE: Chest Wall Tumor (human)


Military family

That's White "Man" to You


Posts: 5515
5000500
triangle4 - 2014-01-22 2:16 PM Have a co-worker who's brother in law recently had a large tumor attached to his breast plate nearly all the away across his chest including collar bones. the treatment they decided on was to completely remove the tumor along with any bones it was attached to....the bones were then replaced with cadaver bones. He is still recovering but there are options out there!

Do you know if they had to do any Chemo or Radiation? 
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Whiteboy
Reg. Jul 2012
Posted 2014-01-22 2:36 PM
Subject: RE: Chest Wall Tumor (human)


Military family

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Posts: 5515
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I have an older bro that is 35.  He has little fatty tumors if a few spots, all came back benign but now he has one in his chest that is about the size of his fist.  It is pressing against his heart and very uncomfortable.  The biopsy came back as malignant, and they said it is rare. They want to do more testing.  They don't even have any real plan at this time.  Which is driving us all nuts.  He has four kids at home oldest is 12 and youngest is 2.  I was just wondering if anybody had had much experience with this, just so we all know what to kinda expect.  Just a lot of crazy stuff in our family right now.   
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Whiteboy
Reg. Jul 2012
Posted 2014-01-22 2:37 PM
Subject: RE: Chest Wall Tumor (human)


Military family

That's White "Man" to You


Posts: 5515
5000500
azsun - 2014-01-22 2:01 PM My friend has a chest wall tumor. She also has tumors in her legs and lungs. She found a tumor in her leg many years ago. It was removed and they told her it was benign. A few months back, she felt a lump in her chest above her breast. It was very small, about the size of a bean when she noticed it. She had it removed, it was a cancerous. It was a awful because they took forever to get the results back. I'm not talking two weeks, more like months … they had to send it off and resend it off. Meanwhile she discovered new tumors in her leg (same spot as before) and then a scan discovered them in her lungs. She went through two tough and aggressive rounds of chemotherapy and radiation. When I say tough, I mean 8 hours a day, 5 days a week for 10 days of chemo and radiation that burned her leg. SHe said she was the first patient to arrive in the morning and the last one to leave in the evening. Her leg seems to be the focal point for the radiation. She has taken everything in stride and her attitude is amazing. She says, she is going to fight fight fight (and she has). THey are going to try to remove the tumor in her leg but it had to shrink (thus the radiation) because it was near an artery. If it doesn't shrink enough, they will amputate her leg. She says, she doesn't care, she would rather live. Her son is 10 years old and she wants to see him grow up, so they can take whatever they need to keep her alive. She's been fighting since about June of last year. She didn't lose any hair until fairly recently. In fact, she didn't tell her son until her hair started falling out what was happening. So she had her son be part of everything and he got to shave her head and tried to make it a positive "lets fight this together" type situation. She hasn't gotten skinny and frail. In fact, she looks good (other than the hair loss) She doesn't work … she had to quit and can generally take care of her home, with some help, if she paces herself. From time to time, we will take turns cooking dinner for the family, especially when she was in chemo. But it isn't as frequent as she has adjusted. I bought her a Pittsburgh Steelers cap and she wears it all the time. What's hard for me as her friend isn't the hair loss (she had beautiful hair) but the loss of her long eye lashes. She just says, she doesn't care … she wants to live. Her immune system is bad and she has to watch herself very carefully. She's been admitted to the hospital a couple of times due to a sore throat that was so painful and she had to be placed on heavy antibiotics and painkillers so she could get some rest to build her strength. I don't know if that's the kind of information you were looking for, but its what I could offer as an observer. Her attitude seems to have played a tremendous role in her fight. I hope that whomever is having to deal with this takes on the same attitude. I think its helped her. I know its helped me when watching her. I understand some of the things she says about it.

That is exactly what I'm looking for thank you! 
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barrelracr131
Reg. Aug 2011
Posted 2014-01-22 2:46 PM
Subject: RE: Chest Wall Tumor (human)


Hungarian Midget Woman


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Location: Midwest
I think a lot will depend on what type of tumor it is... are they planning to biopsy the tumor? If so, Pathology studies will reveal a lot. ETA: there are different types of tumors of varying degrees of malignancy... the pathologists can study a biopsy under the microscope and determine the tumor type and other info

(I'm a lab tech, not a dr FYI... we test some oncology patients.)

If you haven't already, I would find an oncologist with a very good reputation. Not sure where your bro is located, but typically the travel is worth it if they are able to do so. A second opinion may be a good idea if they don't really have a plan to deal with this with his current doctor. Oftentimes, the local hospitals aren't well equipped to treat oncology patients and don't have the most up to date treatment plans.


Edited by barrelracr131 2014-01-22 2:48 PM
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barrelracr131
Reg. Aug 2011
Posted 2014-01-22 2:52 PM
Subject: RE: Chest Wall Tumor (human)


Hungarian Midget Woman


50002000100100
Location: Midwest
Here is some info from Yale U:
 

Malignant Chest-Wall Tumors

Malignant chest-wall tumors have many sites of origin, including the muscles, bones, cartilage, blood vessels, connective tissue, nerves, fatty tissue, and skin of the chest. Dealing with this complex set of tumors is challenging, but one that our surgeons and multidisciplinary team members are highly skilled at treating, including the most complex cases of chest-wall cancers. The majority of chest-wall tumors have no known cause or risks associated with their development. Prior cancers, surgery, or trauma have been implicated in the development of some tumors. Patients may present with a mass, lump, or swelling in the chest with or without pain or discomfort. Diagnosis and staging are complex for these tumors and are performed on an individualized basis. In some circumstances, radiology imaging alone may confirm the disease; in other cases, a biopsy or removal of a portion of the chest wall may be required to diagnose and simultaneously treat patients. 
 
Removing the malignancies in the chest wall generally include removing the structures involved, such as the local ribs and muscles. This procedure is known as a chest-wall resection and is typically associated with the reconstruction of the defect. Depending on the location, size, and extent of the operation, our plastic surgery colleagues may assist in reconstructing the chest wall. Ultimately, the goal of any reconstruction is to restore the normal appearance and function of the chest wall.
 
Our expert surgeons have extensive experience with all aspects associated with resections and reconstructions of malignant chest-wall tumors. This surgery is complex and demands the skill that our world-class surgeons bring. 

http://medicine.yale.edu/surgery/thoracic/patient-care/canerous_conditions/chest_wall_tumors.aspx
 
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Whiteboy
Reg. Jul 2012
Posted 2014-01-22 3:06 PM
Subject: RE: Chest Wall Tumor (human)


Military family

That's White "Man" to You


Posts: 5515
5000500
barrelracr131 - 2014-01-22 2:46 PM I think a lot will depend on what type of tumor it is... are they planning to biopsy the tumor? If so, Pathology studies will reveal a lot. ETA: there are different types of tumors of varying degrees of malignancy... the pathologists can study a biopsy under the microscope and determine the tumor type and other info



(I'm a lab tech, not a dr FYI... we test some oncology patients.)



If you haven't already, I would find an oncologist with a very good reputation. Not sure where your bro is located, but typically the travel is worth it if they are able to do so. A second opinion may be a good idea if they don't really have a plan to deal with this with his current doctor. Oftentimes, the local hospitals aren't well equipped to treat oncology patients and don't have the most up to date treatment plans.

We are in a rural area, they sent him to an IHC hospital about an hours drive away.  They took an initial biopsy but said they didn't really like the sample they had.  They also said they were short on germ cells and would likely take another one for further testing.  My bro is going to get a second opinion at Huntsmans Cancer Institute next week, that is more because of the time it is taking everybody else.  But I guess we will see what happens in the next couple of days.  Does it seem weird that they are moving so slow?  8 days from biopsy for initial result and still nothing 3 days later? 
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azsun
Reg. Jun 2006
Posted 2014-01-22 3:13 PM
Subject: RE: Chest Wall Tumor (human)


Military family
Porta Potty Pants


Posts: 2600
2000500100
sounds similar to my friend's experience. It took them forever to diagnose and we are in the Phoenix metro area. I agree with what has been posted. Find a good doctor, get a second opinion. And as we encouraged my friend, be the squeaky wheel. She finally got mad and started pressing for answers and told them, "this might just be another test for you, but we are talking about MY life here, so please put me through to the doctor".

Cancer Treatment Centers of America has a lot of information on their website about various types of cancer and treatment options. It might be a good place to look for information.
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CYA Ranch
Reg. Feb 2008
Posted 2014-01-22 3:42 PM
Subject: RE: Chest Wall Tumor (human)


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Prayers and happy thoughts for your brother.  
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barrelracr131
Reg. Aug 2011
Posted 2014-01-22 3:42 PM
Subject: RE: Chest Wall Tumor (human)


Hungarian Midget Woman


50002000100100
Location: Midwest
Whiteboy - 2014-01-22 3:06 PM
barrelracr131 - 2014-01-22 2:46 PM I think a lot will depend on what type of tumor it is... are they planning to biopsy the tumor? If so, Pathology studies will reveal a lot. ETA: there are different types of tumors of varying degrees of malignancy... the pathologists can study a biopsy under the microscope and determine the tumor type and other info



(I'm a lab tech, not a dr FYI... we test some oncology patients.)



If you haven't already, I would find an oncologist with a very good reputation. Not sure where your bro is located, but typically the travel is worth it if they are able to do so. A second opinion may be a good idea if they don't really have a plan to deal with this with his current doctor. Oftentimes, the local hospitals aren't well equipped to treat oncology patients and don't have the most up to date treatment plans.
We are in a rural area, they sent him to an IHC hospital about an hours drive away.  They took an initial biopsy but said they didn't really like the sample they had.  They also said they were short on germ cells and would likely take another one for further testing.  My bro is going to get a second opinion at Huntsmans Cancer Institute next week, that is more because of the time it is taking everybody else.  But I guess we will see what happens in the next couple of days.  Does it seem weird that they are moving so slow?  8 days from biopsy for initial result and still nothing 3 days later? 

 If it is a not ideal sample, I don't think this would be unheard of, but sine he is in pain, I would call the doctor. The doctor can sometimes try to get prelimary reports from labs for some tests. 

A cancer center is a good place to go. Sometimes unfortunately you have to really be your own patient advocate. Do keep us updated. Don't be afraid to call the doctor and ask questions, including when results will be available. 
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