|
|
Member
Posts: 6
| A few months ago I had an abnormal mammogram and ultrasound. I was advised to get the mammo and ultrasound because of a lump, tenderness and bleeding. Histiocytes were found in the drainage/blood. I then received a core needle biopsy and was diagnosed with Pseudoangiomatous stromal hyperplasia (PASH). My doctor said due to the size of the tumor that I do not require surgery at this point. The breast health specialist was supposed to follow up with me but never did. I plan on getting regular mammograms to keep an eye on the size. I have had hardly any follow up with information on this condition, have had to research online myself, and some of it is pretty scarey (the tumors growing very large, regrowing after removal, mastectomy, the benign tumor hiding cancer tumors, etc). Does anyone have experience with this or any medical personel know anything about this? | |
| | |
  Angel in a Sorrel Coat
Posts: 16030
 
Location: In a happy place | Bumping this up for you in hopes Scott / HotbearLVR will see this. | |
| | |
 Tough Patooty
Posts: 2615
  
Location: Sperry, OK | If your doctor and the specialist have not followed up with you on this subject to educate you about it, I would be activly looking for new doctors now! | |
| | |
Member
Posts: 6
| sorrel horse ranch - 2014-03-06 12:25 PM
Bumping this up for you in hopes Scott / HotbearLVR will see this.
Thanks!! | |
| | |
Angel in a Sorrel Coat
Posts: 16030
Location: In a happy place | If Scott hasn't answered by this afternoon you might want to pm him. I don't like the fact that the doctor hasn't gotten back to you. | |
| | |
Member
Posts: 6
| sorrel horse ranch - 2014-03-06 1:30 PM
If Scott hasn't answered by this afternoon you might want to pm him. I don't like the fact that the doctor hasn't gotten back to you.
I should call her, I don't know if she forgot or what. Last I talked to her she said she was going to do more research on it and was going to have the breast health specialist call me. That was probably 8-10 weeks ago. We were all so happy that the results didn't show cancer that maybe the actual diagnosis got pushed aside. I'd really like to know more about it, they haven't even told me if I should have a follow up mammogram every 6-12 months. I will PM him, thanks! | |
| | |
 BHW Resident Surgeon
Posts: 25351
Location: Bastrop, Texas | I have never seen this in a patient of mine, but I have heard of it and have read about it, so I'm by no means an expert on the subject.
In all likelihood it is a completely benign condition but I would wait to see what the specialist says when he/she calls.
Generally speaking, I tend to be aggressive when it comes to breast "lumps", with the exception of cysts and "fibrocystic disease", in that I tend to encourage removal. It's not always because I suspect a significant risk of missing a cancer as much as it is something that is constantly on a woman's mind until it's removed. There's something to be said for having a lump totally excised and knowing for certain that it is 100% benign, as opposed to being 98% certain. Breast lumps are easy to remove, usually under local. Yes, there is the risk of bleeding (hematoma), infection, pain, and even scarring.....but I think the peace of mind is worth more. What often happens when women elect to not have something removed is they continually poke and prod. Sometimes it starts to hurt a little from the prodding. It's always on the back of your mind. If you were my wife I would just have it removed, so you can forget about it, once and for all.
That being said, see what they tell you. | |
| | |
Member
Posts: 6
| Thank you for the reply! I think I would like to have it removed, it does hurt and I do check it about once a week because I am paranoid its going to get bigger and bigger. I will call my doctor, it's been almost 6 months since the initial mammogram. | |
| | |
BHW Resident Surgeon
Posts: 25351
Location: Bastrop, Texas | Yeah, it sounds to me that just having it removed would be best, mainly for peace of mind. A lot of women don't like the idea of having a breast biopsy done under local anesthesia, but you can do an awful lot under local, IF you know what you are doing and you take your time. Too many docs just inject a bunch and don't think about where they are injecting, and they don't wait long enough for the local to really start working. They just shoot a bunch in and start cutting, which sometimes hurts.....then after you are sewn up, it gets numb! LOL I did all my hernia repairs under local. The way I did it was I first injected....and I targeted the right areas where the sensory nerves travelled beneath the skin. Just before injecting they were given a sedative that was very short acting. When they woke from that, they were already being shaved and prepped. All that scrubbing for the prep gets the local worked in even better. We played music and just talked, while I worked. Sometimes we told jokes. It was usually a pretty fun experience, and I almost never got negative feedback. Also, doing things under local makes a surgeon handle things more gently, and that's always a good thing. I even removed a gallbladder under local anesthesia once in a woman who had very limited funds and wanted it done as an outpatient. It was before laparoscopic surgery came into vogue, and she was thin, which helped. She stayed in a hotel room across the street, and I checked on her a couple times, as well as a nurse. I was a maverick back then! Sorry....I digress.
Anyway, my vote: have it removed. | |
| | |
Member
Posts: 6
| My biopsy didn't hurt, they numbed me really well, almost too well....I almost passed out, but I think I might have had some kind of reaction to the lidocaine. When they did the "surface" numbing I was fine, but when they went in to numb the deeper tissue I felt like I was going to pass out when they put the medication in. I do scar very easily and have a scar a little smaller then a pencil eraser from the biopsy. I would want to have it removed without being put under. Thanks again for the replies!! | |
| | |
Sock Snob
Posts: 3021
| I had something similar about 10 years ago i had a,biopsy. I told doc instead of,watching my mother had and died of ovarian cancer if insurance will pay for the mass to,be removed lets do it. I did the gave me a little sediation and a local had it done and never looked back it,would have costs way more to,watch it. Just had a mammogrwm after about 5years came back good. I,do not always believe doctors as i started having abdomen pain went to a new ob gwn he did a trans-vagional ultasound had fibroids told them to take it out if insurance will pay formit, come to find out the doc said i had the worst case of endometosis that he had seen in 20 years of practice. All gone now. Just uave it removed and dont worry. | |
| | |
Angel in a Sorrel Coat
Posts: 16030
Location: In a happy place | Thank you Doc...you are the best! | |
| | |
Member
Posts: 6
| daisycake123 - 2014-03-06 8:23 PM
I had something similar about 10 years ago i had a,biopsy. I told doc instead of,watching my mother had and died of ovarian cancer if insurance will pay for the mass to,be removed lets do it. I did the gave me a little sediation and a local had it done and never looked back it,would have costs way more to,watch it. Just had a mammogrwm after about 5years came back good. I,do not always believe doctors as i started having abdomen pain went to a new ob gwn he did a trans-vagional ultasound had fibroids told them to take it out if insurance will pay formit, come to find out the doc said i had the worst case of endometosis that he had seen in 20 years of practice. All gone now. Just uave it removed and dont worry.
That's one thing I am nervous about, what if the diagnosis is wrong? I know they expected me to have peace of mind after they called with the actual diagnosis, and I did for a few days. But then I started feeling uneasy again because I didn't know exactly what PASH was and what if they were wrong? I am going to talk to my doctor about having it removed. Thanks everyone that replied :-) | |
| |
| |
Folks on-line