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 Max is Back
Posts: 6795
    
Location: Flat Rock,IL | Mother and father has to make a decison pretty soon. This is my dauthers boyfriend sister, who had the baby. I would tell more about what's going on, but want to get permission first.
Edited by Kcaughran 2014-03-29 1:29 PM
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Max is Back
Posts: 6795
Location: Flat Rock,IL |
My son-in-law has shared the following information concerning our precious little Wyatt's condition so I feel comfortable sharing this same information publicly instead of bits and pieces privately. Here is what he has shared...please keep little Wyatt in your thoughts and prayers.
Wyatt Status Update:
Little Wyatt is 2 days old & was moved yesterday from UofU newborn ICU to Primary Children's Cardiac ICU, during which he met his brother, Dakota, for the first time.
Heart Status: tetralogy Fallot, he has a ventricle septal defect (hole between heart chambers) as well as pulmonary atresia (not fully developed pulmonary stem/valve to pulmonary artery, feeds blood to lungs for oxygenation). Overall, his heart is strong & with the prostaglandin he is breathing room air and oxygenation levels are in the 80-90s range (great for his condition).
Brain Status: he had an MRI yesterday of which we received the results today. Basically confirmed what we knew already, but did not provide a specific prognosis. Cortical dysplasia, with polymicrogyria. Essentially his frontal & temporal lobes development is abnormal with smoothness & many tiny waves (not smooth brain syndrome); there is a wide array for prognosis. Additionally the small bleed that occurred early on in pregnancy is considered insignificant & most likely as his brain further develops will disappear after a year. Additionally, his brain stem is well formed so that is also positive in this case.
He also has a clubbed left foot.
At this time we are completing genetic testing to help provide as accurate prognosis as possible to help us determine our next steps. We essentially have two options at this point & both are difficult at this time, but we have at least 2 weeks to make a decision... First, to have open heart surgery & temporary shunt placed as a bypass for his heart to allow proper oxygenation of his blood until he is older & more stable (6-8 months of age) when we'd have to complete a second open heart surgery to remove shunt & repair/replace the pulmonary stem/valve & hole in his heart. The second option is to do nothing & enjoy our few weeks with our little man. We are hoping all the testing going on will allow us to make the most informed & proper decision for Wyatt & our family.
We want Wyatt to have a good quality of life whichever outcome plays out. Life is never fair, but that is life. Thank you all for your support, prayers & blessings during this challenging time. — with Melissa Beulin
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Married to a Louie Lover
Posts: 3303
| Many many prayers... |
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 A Somebody to Everybody
Posts: 41354
Location: Under The Big Sky Of Texas | Oh no many prayers for this baby boy,,  |
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  Neat Freak
Posts: 11216
Location: Wonderful Wyoming | many many prayers for baby and his family! |
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 Total Germophobe
Posts: 6443
Location: Montana | Many prayers. |
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 Angel in a Sorrel Coat
Posts: 16030
Location: In a happy place | Dear Heavenly Father we ask that you wrap this family in your loving arms and give guidance and comfort as they face their upcoming days with baby Wyatt. Lead Wyatt's doctors in knowing how to best take care of him. And lastly send angels to be next to Wyatt and his loving family. We thank you for our daily gifts we recieve from you. Amen |
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 Veteran
Posts: 253
Location: EDGE OF INSANITY |  |
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 Expert
Posts: 1561
Location: Texas | Prayers for baby Wyatt |
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A Somebody to Everybody
Posts: 41354
Location: Under The Big Sky Of Texas | sorrel horse ranch - 2014-03-29 2:22 PM
Dear Heavenly Father we ask that you wrap this family in your loving arms and give guidance and comfort as they face their upcoming days with baby Wyatt.  Lead Wyatt's doctors in knowing how to best take care of him. And lastly send angels to be next to Wyatt and his loving family. We thank you for our daily gifts we recieve from you. Amen  Â
Amen |
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 Expert
Posts: 1304
| Praying |
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 Expert
Posts: 1611
Location: bring on the heat, NV | praying |
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 Wide Darn Open
Posts: 2141
| sorrel horse ranch - 2014-03-29 2:22 PM Dear Heavenly Father we ask that you wrap this family in your loving arms and give guidance and comfort as they face their upcoming days with baby Wyatt. Lead Wyatt's doctors in knowing how to best take care of him. And lastly send angels to be next to Wyatt and his loving family. We thank you for our daily gifts we recieve from you. Amen
Amen! |
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 Extreme Veteran
Posts: 468
Location: Crazy House | I have no answers but I do have prayers. Plenty of them for this baby boy and his family. What ever the choice you all make may the Good Lord be there holding your hand and heart. Please keep us updated on this baby and family. |
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 I Am Always Right
Posts: 4264
Location: stray dump capital of the world | |
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Common Sense and then some
Location: So. California | Prayers and many hugs to this young family. |
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The Resident Destroyer of Liberal Logic
Location: PNW | sorrel horse ranch - 2014-03-29 2:22 PM
Dear Heavenly Father we ask that you wrap this family in your loving arms and give guidance and comfort as they face their upcoming days with baby Wyatt.  Lead Wyatt's doctors in knowing how to best take care of him. And lastly send angels to be next to Wyatt and his loving family. We thank you for our daily gifts we recieve from you. Amen  Â
Amen |
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 More bootie than waist!
Posts: 18425
Location: Riding Crackhead. | Many prayers for this beautiful little boy that God created. My heart breaks for him and his family. |
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 Quiet Riot
Posts: 2568
Location: North Dakota | |
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 Crazy Chicken Chick
Posts: 36132
| Many prayers for baby Wyatt! I sure do feel for them being in such a difficult position. I work in L&D and at a hospital with a level 3 NICU so we get moms and babies from 32 counties and it always breaks my heart when I hear parents having to made such difficult decisions. |
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