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I just read the headlines
Posts: 4483
  
| My husband was recently diagnosed with IBD. He is having trouble with pain and is currently on prednisone and Laida, I think, my spelling is probably wrong.
What did you find helped you get into remission?
What foods should he stay away from?
What foods help in the beginning?
Any suggestions are appreciated. He is not used to feeling bad and this is knocking him for a loop. I can't stand to see him hurting.
He has about 3 good days and then he backslides for a couple. |
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 I Prefer to Live in Fantasy Land
Posts: 64864
 
Location: In the Hills of Texas | Do you mean IBS? Irritable Bowel Syndrome?
I don't have any answers but I can offer up prayers for remission. 
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I just read the headlines
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Prayers would be wonderful. Thank you!
IBD - Irritable Bowel Disease, which I read as usually ulcerative colitis or Crohn's disease. However, his gastroenterologist gave us a messy diagnosis. The colonoscopy shows diverticulosis and ulcerative colitis,which is stated on the picture of his colon they gave us, but the Dr. told him he had something like Crohn's but not as bad and then said he also had something like ulcerative colitis just not as bad. We are so confused. He goes back in a few weeks and I am going with him this time.
I was hoping someone might have gone through the same thing and might have some questions we aren't asking but should and some tips we haven't found yet in dealing with this. |
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Veteran
Posts: 268
| I have IBD....Crohns to be exact. There are different variances of the disease. There is also no cure. Foods to avoid are probably about as individual as people who are affected.. There are different therapy regims doctor try. There is bottom up and top down....lucky me...I started at the top because I was not a candidate for the drugs they usually start you on. I take Imuran everyday which will be a lifetime thing unless it does not work anymore and go for IV Remicade about every 7-8 weeks. Each infusion takes a couple hours and is about $6,000 a time. Lucky I have good insurance! I have fistulizing Crohn's so this is the best method for the type I have. You get to know what foods affect you. I really struggle with fatigue...prednisone is horrible stuff! Educate yourself and ask lots of questions... Dairy is a big one which most people find does like IBD patients.
Good luck to you both! |
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 A Somebody to Everybody
Posts: 41354
Location: Under The Big Sky Of Texas | I have UC Ulceritive Colitis. Found out going on 3 years now, I was so sick didnt know what the heck was happening to me and after 3 solid weeks of being so sick I finally gave in and went to the doctor and was send stright to the ER, was a fight to get it under control, now I have no problem staying on my meds I'm taking Sulfasalazine, I have a super Doctor here in Seguin.. |
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I just read the headlines
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| He is really struggling with fatigue, too. It sounds like he is not as serious as y'alls is.
How long did it take for you to start feeling better consistently? He'll feel good for several days and then Wham! It hits him for a couple days.
Do you find that stress may be a trigger?
Since there is no cure, have you found a careful diet and medicine to be the only things that help keep you in remission?
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A Somebody to Everybody
Posts: 41354
Location: Under The Big Sky Of Texas | GLP - 2016-11-01 6:11 PM He is really struggling with fatigue, too. It sounds like he is not as serious as y'alls is. How long did it take for you to start feeling better consistently? He'll feel good for several days and then Wham! It hits him for a couple days. Do you find that stress may be a trigger? Since there is no cure, have you found a careful diet and medicine to be the only things that help keep you in remission? Is he seeing a Gastro doctor? If not he needs to go to one, the diarrhea and the dehydration and the fatigue got me really bad, I didnt know at the time what was wrong with me, thought I could ride it out, But wrong, I was in the hospital twice over this mess, could not get it under control, got out once and was home for 4 days and was back in the hospital for a week that's when we found out about the UC on the second time of being in the hospital. And then on top of that I got C diff..
Edited by Southtxponygirl 2016-11-01 6:29 PM
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I just read the headlines
Posts: 4483
| Southtxponygirl - 2016-11-01 6:27 PM
GLP - 2016-11-01 6:11 PM He is really struggling with fatigue, too. It sounds like he is not as serious as y'alls is. How long did it take for you to start feeling better consistently? He'll feel good for several days and then Wham! It hits him for a couple days. Do you find that stress may be a trigger? Since there is no cure, have you found a careful diet and medicine to be the only things that help keep you in remission? Is he seeing a Gastro doctor? If not he needs to go to one, the diarrhea and the dehydration and the fatigue got me really bad, I didnt know at the time what was wrong with me, thought I could ride it out, But wrong, I was in the hospital twice over this mess, could not get it under control, got out once and was home for 4 days and was back in the hospital for a week that's when we found out about the UC on the second time of being in the hospital. And then on top of that I got C diff..
Yes we have a Gastro doc. It is like pulling teeth to get anything out of him. His D.O. Doc has helped the most. I make him drink a little Gatorade and a lot of water because we are afraid of dehydration. Is the Gatorade a good or bad thing in your experience? |
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I Prefer to Live in Fantasy Land
Posts: 64864
Location: In the Hills of Texas | Our ex son in law has Crohn's and a good female friend of ours has Crohn's and it amazed me how different it affected each of them and what foods they could and couldn't eat. I would start a food diary to figure out what foods seem to effect him. I do know you want to stay away from anything that could cause gas.
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I just read the headlines
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| Nevertooold - 2016-11-01 9:40 PM
Our ex son in law has Crohn's and a good female friend of ours has Crohn's and it amazed me how different it affected each of them and what foods they could and couldn't eat. I would start a food diary to figure out what foods seem to effect him. I do know you want to stay away from anything that could cause gas.
I think that is what is so frustrating to him, that and the uncertainty about when the symptoms are gonna rear their ugly heads.
Thank you all for posting, it helps to know its not just him that is having trouble gaining control of this thing and that it takes time too. |
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A Somebody to Everybody
Posts: 41354
Location: Under The Big Sky Of Texas | GLP - 2016-11-01 6:45 PM Southtxponygirl - 2016-11-01 6:27 PM GLP - 2016-11-01 6:11 PM He is really struggling with fatigue, too. It sounds like he is not as serious as y'alls is. How long did it take for you to start feeling better consistently? He'll feel good for several days and then Wham! It hits him for a couple days. Do you find that stress may be a trigger? Since there is no cure, have you found a careful diet and medicine to be the only things that help keep you in remission? Is he seeing a Gastro doctor? If not he needs to go to one, the diarrhea and the dehydration and the fatigue got me really bad, I didnt know at the time what was wrong with me, thought I could ride it out, But wrong, I was in the hospital twice over this mess, could not get it under control, got out once and was home for 4 days and was back in the hospital for a week that's when we found out about the UC on the second time of being in the hospital. And then on top of that I got C diff.. Yes we have a Gastro doc. It is like pulling teeth to get anything out of him. His D.O. Doc has helped the most. I make him drink a little Gatorade and a lot of water because we are afraid of dehydration. Is the Gatorade a good or bad thing in your experience?
I never tryed the Gatorade at the time, as soon as I would drink anything it would be coming right back out, could not eat are drink anything for weeks.. I would think the gatorade would be a bad thing for him at this time..Did his doctor put him on any meds? |
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I just read the headlines
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| Southtxponygirl - 2016-11-01 10:33 PM
GLP - 2016-11-01 6:45 PM Southtxponygirl - 2016-11-01 6:27 PM GLP - 2016-11-01 6:11 PM He is really struggling with fatigue, too. It sounds like he is not as serious as y'alls is. How long did it take for you to start feeling better consistently? He'll feel good for several days and then Wham! It hits him for a couple days. Do you find that stress may be a trigger? Since there is no cure, have you found a careful diet and medicine to be the only things that help keep you in remission? Is he seeing a Gastro doctor? If not he needs to go to one, the diarrhea and the dehydration and the fatigue got me really bad, I didnt know at the time what was wrong with me, thought I could ride it out, But wrong, I was in the hospital twice over this mess, could not get it under control, got out once and was home for 4 days and was back in the hospital for a week that's when we found out about the UC on the second time of being in the hospital. And then on top of that I got C diff.. Yes we have a Gastro doc. It is like pulling teeth to get anything out of him. His D.O. Doc has helped the most. I make him drink a little Gatorade and a lot of water because we are afraid of dehydration. Is the Gatorade a good or bad thing in your experience?
Yes he put him on prednisone and Lailda.
It didn't seem to affect him, but he hasn't drank any in awhile. I was worried about it making him worse, but we were really worried about dehydration.
One thing that does seem to effect him are the digestive enzymes they told him to take. They gave him bad heartburn really bad. |
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A Somebody to Everybody
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Location: Under The Big Sky Of Texas | GLP - 2016-11-01 10:56 PM Southtxponygirl - 2016-11-01 10:33 PM GLP - 2016-11-01 6:45 PM Southtxponygirl - 2016-11-01 6:27 PM GLP - 2016-11-01 6:11 PM He is really struggling with fatigue, too. It sounds like he is not as serious as y'alls is. How long did it take for you to start feeling better consistently? He'll feel good for several days and then Wham! It hits him for a couple days. Do you find that stress may be a trigger? Since there is no cure, have you found a careful diet and medicine to be the only things that help keep you in remission? Is he seeing a Gastro doctor? If not he needs to go to one, the diarrhea and the dehydration and the fatigue got me really bad, I didnt know at the time what was wrong with me, thought I could ride it out, But wrong, I was in the hospital twice over this mess, could not get it under control, got out once and was home for 4 days and was back in the hospital for a week that's when we found out about the UC on the second time of being in the hospital. And then on top of that I got C diff.. Yes we have a Gastro doc. It is like pulling teeth to get anything out of him. His D.O. Doc has helped the most. I make him drink a little Gatorade and a lot of water because we are afraid of dehydration. Is the Gatorade a good or bad thing in your experience? Yes he put him on prednisone and Lailda. It didn't seem to affect him, but he hasn't drank any in awhile. I was worried about it making him worse, but we were really worried about dehydration. One thing that does seem to effect him are the digestive enzymes they told him to take. They gave him bad heartburn really bad.
Poor guy I feel for him, I never did/do get heartburn, but my doctor did stress for me to stay on probiotics..When I got really really sick the few more times after my hospital stays he put me on a high dose of steroids to get all the inflammation down in my colon and there were more meds but cant remember what they were. Thats the main thing is not to get dehydrated, and if he does get to feeling worst make him go to the hospital, thats where I screwed up, hubby kept trying to get me to go but I thought I could whip it on my own, not.. |
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 Goat Giver
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| If you are not happy with the answers you are getting, find a new doctor. I am sitting in a treatment center over thousand miles from home waiting on my mother to come me out of surgery. The local doctors were arrogant, did not communicate and basically wrote her off. You have to pursue good healthcare, it does not just happen anymore. |
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 Expert
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| FORCO????? I hear so many great things!! Never hurts to try. I know Herbie posted on here about some IBS issues she was seeing results with curost. |
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I just read the headlines
Posts: 4483
| FLITASTIC - 2016-11-03 12:44 PM
FORCO????? I hear so many great things!! Never hurts to try. I know Herbie posted on here about some IBS issues she was seeing results with curost.
Oh, that is a good idea, thanks! I need to order some from NTO. |
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I just read the headlines
Posts: 4483
| kmcsunshine - 2016-11-03 11:46 AM
If you are not happy with the answers you are getting, find a new doctor. I am sitting in a treatment center over thousand miles from home waiting on my mother to come me out of surgery. The local doctors were arrogant, did not communicate and basically wrote her off. You have to pursue good healthcare, it does not just happen anymore.
This is such an individual disease, I thought I would ask what people found that helped them. We are only a month into a diagnosis, and I wanted to give the doctor a chance. However, I have no problem looking for another doctor. I hope your mom comes out of surgery in good shape. She is lucky to have you looking out for her. |
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 The Bird Lady
Posts: 6440
Location: The end of the Earth, SE AR | Google "FODMAP" there is good info from Monash University in Australia as well as other hospitals in the US. FODMAPS are foods that are hard to digest and end up in the small intestine. Many people have sensitivities to the different food groups represented by the letters in FODMAP. I have big issues with fructose. You can work on an elmination diet and then slowly reintroduce specific food groups to see how you tolerate them. They suggest you work with a dietician especially one that is familiar with the FODMAP elimination diet. There are also several FB FODMAP groups.
This isn't a fad, there's nothing to buy it's medically proven and a way to help people with different types of colitis or IBS see if they can get relief by identifying food sensitivities. This is not a GMO or organic food issue.
The acronym FODMAP stands for Fermentable Oligosaccharides, Disaccharides, Monosaccharides And Polyols. These short-chain carbohydrates are incompletely absorbed in the gastrointestinal tract and can be easily fermented by gut bacteria |
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I Prefer to Live in Fantasy Land
Posts: 64864
Location: In the Hills of Texas | rollingrfarm - 2016-11-03 3:16 PM Google "FODMAP" there is good info from Monash University in Australia as well as other hospitals in the US. FODMAPS are foods that are hard to digest and end up in the small intestine. Many people have sensitivities to the different food groups represented by the letters in FODMAP. I have big issues with fructose. You can work on an elmination diet and then slowly reintroduce specific food groups to see how you tolerate them. They suggest you work with a dietician especially one that is familiar with the FODMAP elimination diet. There are also several FB FODMAP groups.
This isn't a fad, there's nothing to buy it's medically proven and a way to help people with different types of colitis or IBS see if they can get relief by identifying food sensitivities. This is not a GMO or organic food issue.
The acronym FODMAP stands for Fermentable Oligosaccharides, Disaccharides, Monosaccharides And Polyols. These short-chain carbohydrates are incompletely absorbed in the gastrointestinal tract and can be easily fermented by gut bacteria
Interesting...I have a bladder disease that involves the inflammation of the bladder lining and I did a food diary to find out what would give me a flare up and fructose is a definete no no along with acidic foods.
As far as gatorade..it's total junk IMO. You need to find a good electrolyte that isn't full of sugars or artifical sweetners. I use the Electrolyte that THE sells. The 2 ounce bottle makes up a gallon of Electrolyte water. I would take as I felt needed. My husband also drinks it when he works outside and sweats. His doctor told him this summer not to sweat..LOL
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I just read the headlines
Posts: 4483
| rollingrfarm - 2016-11-03 3:16 PM
Google "FODMAP" there is good info from Monash University in Australia as well as other hospitals in the US. FODMAPS are foods that are hard to digest and end up in the small intestine. Many people have sensitivities to the different food groups represented by the letters in FODMAP. I have big issues with fructose. You can work on an elmination diet and then slowly reintroduce specific food groups to see how you tolerate them. They suggest you work with a dietician especially one that is familiar with the FODMAP elimination diet. There are also several FB FODMAP groups.
This isn't a fad, there's nothing to buy it's medically proven and a way to help people with different types of colitis or IBS see if they can get relief by identifying food sensitivities. This is not a GMO or organic food issue.
The acronym FODMAP stands for Fermentable Oligosaccharides, Disaccharides, Monosaccharides And Polyols. These short-chain carbohydrates are incompletely absorbed in the gastrointestinal tract and can be easily fermented by gut bacteria
Thanks, I will check this out for sure! |
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