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OT - But, I think I really just need to vent?

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SloRide
Reg. Oct 2011
Posted 2017-01-03 3:21 PM
Subject: RE: OT - But, I think I really just need to vent?


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TURNNBURNCOWGIRL - 2017-01-03 3:05 PM

SloRide - 2017-01-03 2:29 PM My 3 year old son is mildly Autistic so I know all about the stresses that an Autism diagnosis comes with.At around 18 months My son stopped talking, he also seemed almost depressed and was not making age appropriate progress with feeding. Got him evaluated and into an early intervention program as soon as I could. We are so fortunate to have these wonderful supportive people helping my son. He has made great improvements in almost all areas except with his food aversion. His speech therapist was upfront about it, she said he will always have a limited diet:( I have had people make rude comments about my sons limited diet or my chouce to be a stay at home mom. But they have no idea what he and I have gone through and I never feel like I have to explain anything to people who ignorantly pass judgement. Their opinions DO NOT MATTER.

YES!! Thank you! Memphis's diet is very limited, as well. He eats very few things, will not try anything new... his main source of food is... waffles. He will eat them all day, every day. Or hotdogs, which I find disgusting, lol. Memphis also stopped even trying to talk around 18 months or so... I thought, with everything he has went through, it was just his way of coping, you know?

Yes, my son also eats waffles like they are going out of style. Most of what he eats are carbs. We give him vitamins and pediasure. He is healthy and that is the important thing. I get a lot of family members that say things like "you're lazy" "Make him go hungry and then he will eat. He won't starve himself."
They do not understand that he actually would starve himself. He will also vomit if the texture of his food does not agree with him. He seems to just like dry foods.
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TURNNBURNCOWGIRL
Reg. Dec 2008
Posted 2017-01-03 3:22 PM
Subject: RE: OT - But, I think I really just need to vent?


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rodeomom3 - 2017-01-03 3:16 PM  People can be horrid, especially when hiding behind a screen.    Your son is a beautiful soul

Thank you! If I could figure out how to post a video, I would! He has the coolest little personality. He is such a little jokester! 
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TURNNBURNCOWGIRL
Reg. Dec 2008
Posted 2017-01-03 3:26 PM
Subject: RE: OT - But, I think I really just need to vent?


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SloRide - 2017-01-03 3:21 PM
TURNNBURNCOWGIRL - 2017-01-03 3:05 PM
SloRide - 2017-01-03 2:29 PM My 3 year old son is mildly Autistic so I know all about the stresses that an Autism diagnosis comes with.At around 18 months My son stopped talking, he also seemed almost depressed and was not making age appropriate progress with feeding. Got him evaluated and into an early intervention program as soon as I could. We are so fortunate to have these wonderful supportive people helping my son. He has made great improvements in almost all areas except with his food aversion. His speech therapist was upfront about it, she said he will always have a limited diet:( I have had people make rude comments about my sons limited diet or my chouce to be a stay at home mom. But they have no idea what he and I have gone through and I never feel like I have to explain anything to people who ignorantly pass judgement. Their opinions DO NOT MATTER.
YES!! Thank you! Memphis's diet is very limited, as well. He eats very few things, will not try anything new... his main source of food is... waffles. He will eat them all day, every day. Or hotdogs, which I find disgusting, lol. Memphis also stopped even trying to talk around 18 months or so... I thought, with everything he has went through, it was just his way of coping, you know?
Yes, my son also eats waffles like they are going out of style. Most of what he eats are carbs. We give him vitamins and pediasure. He is healthy and that is the important thing. I get a lot of family members that say things like "you're lazy" "Make him go hungry and then he will eat. He won't starve himself." They do not understand that he actually would starve himself. He will also vomit if the texture of his food does not agree with him. He seems to just like dry foods.

Memphis is the same way. He mainly eats - waffles(I have been putting peanut butter or Nutella on them to try and get some vitamins in him) ramen noodles(he will ONLY he eat the chicken flavored ones) macaroni and cheese, pizza, rice and gravy, lasagna and a few others things. He doesn't eat much meat. And yes, if he doesn't like something, he will throw it up or gag as soon as it hits his mouth. I give him Pediasure, too. He will also go days without eating. I have been told the same things... make him go hungry until he eats what is on his plate.... no. I will not starve my son to make him fit into your social standards. If he doesn't like it, he doesn't have to eat it. He is facing enough against him to have to worry about getting in trouble for not eating what he doesn't like. Does your son talk now? How old is he? 
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mtcanchazer
Reg. Apr 2012
Posted 2017-01-03 8:52 PM
Subject: RE: OT - But, I think I really just need to vent?



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TURNNBURNCOWGIRL, I really hope you read what I have to say! I'm sure there are MANY more people who know more about this than I do, and my experience is limited, but I want to help. I also want to send hugs to you, too.

 I have only been around autisitic children a little, as I used to volunteer at an equine therapy center where we used horses and riding horses as therapy for autistic children...it gave them something to focus on as a tool for us to be able to teach. In process of using this therapy, we found sign language to be really effective in communication with autistic children. Perhaps that would be an approach with your son where he will be able to communicate and get his point across. By all means, keep working with him on speech, but perhaps sign language would ease some of his frustration. And autistic children do get really frustrated because they so badly want to be understood, to let you know what they want. It will get better.

Remember: Temple Grandin is autistic! But she has a doctorate and has adapted new methods with livestock for ease of stress on livestock and handling them. And she has fought her entire life for the respect she has finally earned. But really special people sometimes take really special care, and it sounds like you are the person for your really special person.

I also wanted to invite you to read a book. It is actually a novel by Nicholas Sparks (I have already read it and would be most happy to send you my copy if you like). The name of it is called The Rescue, and has a character in the story, a little boy, that was misdiagnosed several times by doctors, including diagnoses of autisim and hearing problems. The thing is from the summary or footnote at the end of the book, it mentioned the Nicholas Sparks' son had those issues and was misdiagnosed as well with those issues. It takes time and work to get them to be able to talk, but it happens!

 
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SloRide
Reg. Oct 2011
Posted 2017-01-03 9:32 PM
Subject: RE: OT - But, I think I really just need to vent?


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Posts: 380
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TURNNBURNCOWGIRL - 2017-01-03 3:26 PM

SloRide - 2017-01-03 3:21 PM
TURNNBURNCOWGIRL - 2017-01-03 3:05 PM
SloRide - 2017-01-03 2:29 PM My 3 year old son is mildly Autistic so I know all about the stresses that an Autism diagnosis comes with.At around 18 months My son stopped talking, he also seemed almost depressed and was not making age appropriate progress with feeding. Got him evaluated and into an early intervention program as soon as I could. We are so fortunate to have these wonderful supportive people helping my son. He has made great improvements in almost all areas except with his food aversion. His speech therapist was upfront about it, she said he will always have a limited diet:( I have had people make rude comments about my sons limited diet or my chouce to be a stay at home mom. But they have no idea what he and I have gone through and I never feel like I have to explain anything to people who ignorantly pass judgement. Their opinions DO NOT MATTER.
YES!! Thank you! Memphis's diet is very limited, as well. He eats very few things, will not try anything new... his main source of food is... waffles. He will eat them all day, every day. Or hotdogs, which I find disgusting, lol. Memphis also stopped even trying to talk around 18 months or so... I thought, with everything he has went through, it was just his way of coping, you know?
Yes, my son also eats waffles like they are going out of style. Most of what he eats are carbs. We give him vitamins and pediasure. He is healthy and that is the important thing. I get a lot of family members that say things like "you're lazy" "Make him go hungry and then he will eat. He won't starve himself." They do not understand that he actually would starve himself. He will also vomit if the texture of his food does not agree with him. He seems to just like dry foods.

Memphis is the same way. He mainly eats - waffles(I have been putting peanut butter or Nutella on them to try and get some vitamins in him) ramen noodles(he will ONLY he eat the chicken flavored ones) macaroni and cheese, pizza, rice and gravy, lasagna and a few others things. He doesn't eat much meat. And yes, if he doesn't like something, he will throw it up or gag as soon as it hits his mouth. I give him Pediasure, too. He will also go days without eating. I have been told the same things... make him go hungry until he eats what is on his plate.... no. I will not starve my son to make him fit into your social standards. If he doesn't like it, he doesn't have to eat it. He is facing enough against him to have to worry about getting in trouble for not eating what he doesn't like. Does your son talk now? How old is he? 

Yes my son is talking now. It was hard work to get him close to where he needed to be but, once he started building a larger vocabulary it became easier and quicker for him. He was put in a program through the local public school. First it was just a few months of OT and speech at our house. One he was two they put him in a class at the school 5 days a week for 3 hours a day. Plus he had ABA twice a week through our community mental health program. They were great to work with and along paid for respite services. We eventually dropped ABA because he had made so much progress I wanted him to have more free time.

He will be 4 the end of April. He still has some habits related to his autism. If he is not getting enough input her will stim. If he gets too much he could have a meltdown. But his meltdowns have lessened since he has started communicating better. It's very hard work but the worst part is the constant worrying. At least for me. I always worried if I was doing enough, will it get worse as he gets older, did I cause this.

Edited by SloRide 2017-01-03 9:36 PM
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Chandler's Mom
Reg. Jan 2015
Posted 2017-01-03 9:40 PM
Subject: RE: OT - But, I think I really just need to vent?



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TURNNBURNCOWGIRL - 2017-01-03 8:14 AM

hoofs_in_motion - 2017-01-03 8:11 AM
TURNNBURNCOWGIRL - 2017-01-03 8:00 AM Okay... here it goes. Most of you may remember me from a few years ago - I was in a bad place, almost married to an awful man, living with my parents, yada, yada, yada. Then, found out I was pregnant by said awful guy. Had baby. Awful guy got cancer(leukemia)... he passed away on September 24th, 2015.... Guys, bare with me here... I am trying to give some back details, plus, not linger or ramble... I'm awful at this.

?Memphis(my son) was about 4 or 5 months old when his father(Mike) was diagnosed with leukemia. He never had much interaction with him. Then, when Memphis was about a year old, we finally split up for good. I won't go into too much detail but, I could not handle the abuse any longer. Well, Memphis has always been a normal little boy. Progressed normally, talking, motor skills, the works. Then, when he turned 2... I really noticed one day, he doesn't talk like kids his age. Took him to the doctor, they said he just didn't want to talk. Okay, fine. Maybe he is just shy/quiet? Skip to 3 years... still not talking, at all. Just babbling. He's had multiple hearing tests done, perfect hearing. Take him to the Nemours Children's Hospital in Jacksonville, FL(We live in Alabama... it was like an 8 hour drive one way) They say they believe he is autistic. I take him home, take him to his pediatrician, he refers me to a neurologist... more tests - MRIs, etc. He is, indeed, autistic. Memphis is nonverbal autistic. However, he is very high on the spectrum - meaning, he is very high functioning just like a child his age, he just doesn't talk. Here lately... he has been trying, more and more. But, everything is babbled and garbled. As in, if you ask him what color my shirt is and it is red, he says (Rrrr).... He cannot pronounce full words. But, he tries so hard. And, if he cannot make you understand what he is trying to say, it really discourages him and embarasses him... I try to help him through his words, but, he gets so upset, so quickly.

?Now, I said all of that to say this - Sometimes.... I feel like I am failing as a mother. I try so hard to help him, to teach him.... but then, you have some of those awful people in the world. The ones that look and stare and make comments when my autistic child is having a meltdown in a store because his whole little world is torn upside down because he doesn't understand something and I am sitting in the middle of the cheese aisle in Wal-Mart holding him.... other kids have laughed at him. Even grown people have made comments about him. How do I handle this? My inner Mama Bear wants to rip them apart... but, that is not socially acceptable, right?

?I don't know what I am really asking for here. Maybe, I just needed to see my own thoughts... I don't know. Ladies, how would you handle this?

?I posted a video on one of those silly little groups on Facebook.... This video was of my son, riding his horse. Little background on the horse - She is a 17 year old paint mare. She is an absolute SAINT. She loves that little boy, more than she loves anything. She will leave her grain to come hang out with Memphis...not anyone else, but him. Also, this mare is very, very, very, very broke. She responds to cues on the ground immediately. But, I have drilled obedience into her since she was a 2 year old.... and then, when Memphis started to want to ride, I would work her 4 days a week in a round pen and just really drilled ground work into her.

?Okay.... back to the video.... it was of Memphis, riding his horse. In his own saddle, but, the paint horse is on a lunge line. I still need that extra amount of protection, per se. But, he is stopping her, backing her up and making her walk on, by himself. I was so proud! Just needed to show off my baby, you know? Some ignorant girl... not sure how old she was, commented on said video..... YOU SHOULDN'T LET RETARDS RIDE..... just like that.

?I lost it. How can you talk about someone's child?!?! I just don't understand.... Ladies, I need some prayers, some advice, something.... to make me feel like I am not the worst mother to ever walk the planet.



?If you read all of my blubbering mess, thank you. You guys are the best <3 
what's this B**ches name? I ain't afraid to make a grown woman cry 

 I am not sure of her name.... they blocked me from the group and removed my post when I may or may not have threatened the girl. Thank you for this.

Oh I'm sure you didn't threaten her. . . . I'm SURE none of us mommas would have looked her up and wanted to whoop her tail. You can mess with me, look at me cause of the way I walk, laugh behind your hand seeing me ride my horse different than everyone else, but don't you DARE mess with my baby. My momma gene rises to the surface and I kinda get rednecky. And make no apologies about it.

You sound like a wonderful mother that is doing right by her child. You hang in there and dont let someone's ignorance get you down.
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Chandler's Mom
Reg. Jan 2015
Posted 2017-01-03 9:49 PM
Subject: RE: OT - But, I think I really just need to vent?



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TURNNBURNCOWGIRL - 2017-01-03 9:12 AM

You ladies are amazing. Thank you. I know I can come here for support, for advice and even, just to vent. He is in speech therapy, it is through the school, where he will be attending. There is a special teacher who has her own class for strictly autistic children. I am so afraid to let him go to school. Fear of him being embarassed, fear of ridicule, and, I won't be able to protect my baby while he is gone. I know, silly, huh? I have tried some of the apps.... but, Memphis isn't too keen on watching things on a phone, for long. He is very busy... wants to be outside, being a little boy... eating dirt and stuff, you know? He doesn't have meltdowns to often. Maybe once or twice a month. But, when he does, he is almost inconsoleable. I try to get his attention and find something he likes. One time, I had to buy three blankets so he could lay down in the buggy in Wal-Mart and cover up with one of them... completely covered up while he played on my phone. Sometimes, we have to sit in the floor in the middle of a busy store. Sometimes, I have to stop my truck on the way somewhere so we can get out and walk around and talk about what is bothering him. I try to have a calm, quiet, soft approach, always. I don't want him to see me upset because I don't want him to think he has done something wrong. My husband(who is not his father) is a saint. He tries so hard to help him, too. The other night, Memphis had a meltdown in the bath tub.... I could not for the life of me calm him down and, he did not want to get out of the tub. What does Brandon do? He gets in the bath tub with him and they play with bubbles and his monster trucks until the water got cold. I thank the Good Lord every day for bringing that man to me and more importantly, to Memphis. Brandon is the Dad Memphis never had.
Sometimes.... I get so upset. So flustered. So frustrated. So... I don't even know. That I feel like I might explode. Being a SAHM that works from home, it can be difficult sometimes. Thank goodness for Brandon. He knows how hard it can be, even on me... and let's me have a break. I know.... some people say I shouldn't need a break from my own kid, that I am being selfish... but, sometimes... I really just need some quiet time. 

You are being way too hard on yourself---to have the patience you have and the ability to stop in the middle of the situation and think what will help. . . . Well, I know I wouldn't be able to do that. I say "what a woman" and agree with you on what a good, good man you have.
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Southtxponygirl
Reg. Nov 2006
Posted 2017-01-03 9:49 PM
Subject: RE: OT - But, I think I really just need to vent?



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Chandler's Mom - 2017-01-03 9:40 PM
TURNNBURNCOWGIRL - 2017-01-03 8:14 AM
hoofs_in_motion - 2017-01-03 8:11 AM
TURNNBURNCOWGIRL - 2017-01-03 8:00 AM Okay... here it goes. Most of you may remember me from a few years ago - I was in a bad place, almost married to an awful man, living with my parents, yada, yada, yada. Then, found out I was pregnant by said awful guy. Had baby. Awful guy got cancer(leukemia)... he passed away on September 24th, 2015.... Guys, bare with me here... I am trying to give some back details, plus, not linger or ramble... I'm awful at this.

?Memphis(my son) was about 4 or 5 months old when his father(Mike) was diagnosed with leukemia. He never had much interaction with him. Then, when Memphis was about a year old, we finally split up for good. I won't go into too much detail but, I could not handle the abuse any longer. Well, Memphis has always been a normal little boy. Progressed normally, talking, motor skills, the works. Then, when he turned 2... I really noticed one day, he doesn't talk like kids his age. Took him to the doctor, they said he just didn't want to talk. Okay, fine. Maybe he is just shy/quiet? Skip to 3 years... still not talking, at all. Just babbling. He's had multiple hearing tests done, perfect hearing. Take him to the Nemours Children's Hospital in Jacksonville, FL(We live in Alabama... it was like an 8 hour drive one way) They say they believe he is autistic. I take him home, take him to his pediatrician, he refers me to a neurologist... more tests - MRIs, etc. He is, indeed, autistic. Memphis is nonverbal autistic. However, he is very high on the spectrum - meaning, he is very high functioning just like a child his age, he just doesn't talk. Here lately... he has been trying, more and more. But, everything is babbled and garbled. As in, if you ask him what color my shirt is and it is red, he says (Rrrr).... He cannot pronounce full words. But, he tries so hard. And, if he cannot make you understand what he is trying to say, it really discourages him and embarasses him... I try to help him through his words, but, he gets so upset, so quickly.

?Now, I said all of that to say this - Sometimes.... I feel like I am failing as a mother. I try so hard to help him, to teach him.... but then, you have some of those awful people in the world. The ones that look and stare and make comments when my autistic child is having a meltdown in a store because his whole little world is torn upside down because he doesn't understand something and I am sitting in the middle of the cheese aisle in Wal-Mart holding him.... other kids have laughed at him. Even grown people have made comments about him. How do I handle this? My inner Mama Bear wants to rip them apart... but, that is not socially acceptable, right?

?I don't know what I am really asking for here. Maybe, I just needed to see my own thoughts... I don't know. Ladies, how would you handle this?

?I posted a video on one of those silly little groups on Facebook.... This video was of my son, riding his horse. Little background on the horse - She is a 17 year old paint mare. She is an absolute SAINT. She loves that little boy, more than she loves anything. She will leave her grain to come hang out with Memphis...not anyone else, but him. Also, this mare is very, very, very, very broke. She responds to cues on the ground immediately. But, I have drilled obedience into her since she was a 2 year old.... and then, when Memphis started to want to ride, I would work her 4 days a week in a round pen and just really drilled ground work into her.

?Okay.... back to the video.... it was of Memphis, riding his horse. In his own saddle, but, the paint horse is on a lunge line. I still need that extra amount of protection, per se. But, he is stopping her, backing her up and making her walk on, by himself. I was so proud! Just needed to show off my baby, you know? Some ignorant girl... not sure how old she was, commented on said video..... YOU SHOULDN'T LET RETARDS RIDE..... just like that.

?I lost it. How can you talk about someone's child?!?! I just don't understand.... Ladies, I need some prayers, some advice, something.... to make me feel like I am not the worst mother to ever walk the planet.



?If you read all of my blubbering mess, thank you. You guys are the best <3 
what's this B**ches name? I ain't afraid to make a grown woman cry 
 I am not sure of her name.... they blocked me from the group and removed my post when I may or may not have threatened the girl. Thank you for this.
Oh I'm sure you didn't threaten her. . . . I'm SURE none of us mommas would have looked her up and wanted to whoop her tail. You can mess with me, look at me cause of the way I walk, laugh behind your hand seeing me ride my horse different than everyone else, but don't you DARE mess with my baby. My momma gene rises to the surface and I kinda get rednecky. And make no apologies about it. You sound like a wonderful mother that is doing right by her child. You hang in there and dont let someone's ignorance get you down.

We're like a mama Lion protecting our clubs and we will draw blood, either physically or mentality  
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Chandler's Mom
Reg. Jan 2015
Posted 2017-01-03 9:54 PM
Subject: RE: OT - But, I think I really just need to vent?



My Heart Be Happy


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What a cute little boy----and God bless horses like that mare. She'll help him more than anyone knows.
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total performance
Reg. Nov 2007
Posted 2017-01-03 10:23 PM
Subject: RE: OT - But, I think I really just need to vent?



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What an absolutely adorable little boy. He's happy as a lark sitting on his horse. How could anyone be so cruel to say such a thing is beyond me. Good job mom!
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TURNNBURNCOWGIRL
Reg. Dec 2008
Posted 2017-01-04 8:13 AM
Subject: RE: OT - But, I think I really just need to vent?


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You ladies are absolutely amazing. I don't know what else to say besides that. You have definitely helped me through this. It means a lot to me, you have no idea. He loves that horse! And, she just adores him, too. I know I am hard on myself but, like any mother... I only want the best for my son. 
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NJJ
Reg. Jul 2006
Posted 2017-01-04 8:41 AM
Subject: RE: OT - But, I think I really just need to vent?


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TURNNBURNCOWGIRL - 2017-01-04 8:13 AM You ladies are absolutely amazing. I don't know what else to say besides that. You have definitely helped me through this. It means a lot to me, you have no idea. He loves that horse! And, she just adores him, too. I know I am hard on myself but, like any mother... I only want the best for my son. 

You have really been given a lot of good information here in this thread as to where to get help. Your "main" objective needs to be "patience". There will be "melt downs" (he's still a child after all) and you will learn what stimuli sets him off. Austic children's brains are just "wired" differently and this certainly doesn't mean with any mental deficiencies. I wish you would have let us know sooner about the remark on the video....we could have all "whipped a$$" on her.....LOL.....Just continue what you are doing and give him lots of love ..... And there is certainly NO shame in taking a break for yourself. It sounds like you have got a wonderful husband who will support you doing just that...... Now back to my "bat cave" .......LOL
 
              
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streakysox
Reg. Jul 2008
Posted 2017-01-04 8:54 AM
Subject: RE: OT - But, I think I really just need to vent?



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I am going to keep this very short. I had a friend who had an autistic daughter. Therapists said she needed to ride at the therapeutic Riding center. She did and moved into the gifted and and talented program at school. Graduated in the top of her class and now attends college.


Get in a therapeutic riding program as soon as possible.

Typed this very quickly so may have errors.


Good luck.
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RnRJack
Reg. Mar 2010
Posted 2017-01-04 9:35 AM
Subject: RE: OT - But, I think I really just need to vent?



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I have a 4 year old step daughter who is about a 6 on the autism spectrum out of 10. She will talk talk talk but her speech is hard to understand and her learning is very delayed. She often has bad temper tandrums and screaming fits. It takes a very patient person to handle her. The horses have been a god send as well as our dogs. We have a 3 year old goldendoodle who is very protective of her and we just got a mixed pit bull puppy that she is in love with.

We had to stop riding for a while as she starting having very severe epileptic seizures recently but we still take her out to the barn to enjoy, pet, and brush the horses. Along with the seizures they gave her a few medications to help her learning and calm her down a bit, we hAve seen a compelled 360 in her learning, speech and behavior. Some of the meds do however make her sleepy. We have been going to Orlando Florida's hospital for children which is about an hour from us but the doctors there are wonderful.

I give anyone with an autistic child huge props as it is probably one of the hardest things I've ever had experience with in my life. Thankfully we have a strong support system from her grandparents. Her mother is not in the picture because she "can't handle her" so it's just us.

If you ever have any questions please message me!
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TURNNBURNCOWGIRL
Reg. Dec 2008
Posted 2017-01-04 9:45 AM
Subject: RE: OT - But, I think I really just need to vent?


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Location: Southern Alabama
RnRJack - 2017-01-04 9:35 AM I have a 4 year old step daughter who is about a 6 on the autism spectrum out of 10. She will talk talk talk but her speech is hard to understand and her learning is very delayed. She often has bad temper tandrums and screaming fits. It takes a very patient person to handle her. The horses have been a god send as well as our dogs. We have a 3 year old goldendoodle who is very protective of her and we just got a mixed pit bull puppy that she is in love with. We had to stop riding for a while as she starting having very severe epileptic seizures recently but we still take her out to the barn to enjoy, pet, and brush the horses. Along with the seizures they gave her a few medications to help her learning and calm her down a bit, we hAve seen a compelled 360 in her learning, speech and behavior. Some of the meds do however make her sleepy. We have been going to Orlando Florida's hospital for children which is about an hour from us but the doctors there are wonderful. I give anyone with an autistic child huge props as it is probably one of the hardest things I've ever had experience with in my life. Thankfully we have a strong support system from her grandparents. Her mother is not in the picture because she "can't handle her" so it's just us. If you ever have any questions please message me!

No questions, but, I'd love to just talk about the things you do, etc! 
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RnRJack
Reg. Mar 2010
Posted 2017-01-04 9:49 AM
Subject: RE: OT - But, I think I really just need to vent?



Expert


Posts: 1612
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Location: Cocoa, Florida
I can say it does get easier as they get older, we have overcome some huge hurdles in a year, we never used to be able to go to a restaurant and eat with her, lately we've been able to sit for over an hour as long as food doesn't take to long or service. We did have to leave a restaurant the other day and the people behind us said "thank God" when we got up to leave, I wanted to turn around and yell at them but what's the point. Walk a day in our shoes and I bet they'd have a different attitude.
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TURNNBURNCOWGIRL
Reg. Dec 2008
Posted 2017-01-11 8:31 AM
Subject: RE: OT - But, I think I really just need to vent?


Never Named


Posts: 1837
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Location: Southern Alabama
A lot of times, when I take Memphis somewhere... people stare. He gets overwhelmed sometimes but, that's okay. We try, every day to learn something new. This week I have been trying to teach him how to say easy words - Okay. No. Please. Good. Bad. - things like that. We work on one word a day. He is trying, so hard. And, that is all that matters to me. The people who stare, I just always tell them 'Thank you' even if they don't say anything. They don't know the daily struggles my baby goes through... to just make his needs and wants understood.  
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cloverleaf
Reg. May 2004
Posted 2017-01-11 9:44 PM
Subject: RE: OT - But, I think I really just need to vent?



Quarter Horse HIstorian


Posts: 2878
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Location: Aubrey, Texas
I highly recommend Temple Grandin's books, but until you get to a bookstore,you can find several videos of her on YouTube. She explains what it feels like to be autistic. I remember from one of her books that she said some autistic people are so highly sensitive that they can hear the electricity running through the wires in walls. She is a highly functioning PhD. because her mother never gave up- so pat yourself on the back for seeking out the best for your son!!! You might also look up The Horse Boy- I read the book several years ago and later it was made into a movie (2009?) The child, Rowan, had a special affinity to horses. Don't beat yourself up and know that we are all pulling for you and Memphis!
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SpaceCowboy
Reg. Feb 2013
Posted 2017-01-12 9:37 AM
Subject: RE: OT - But, I think I really just need to vent?


Veteran


Posts: 276
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Your son is adorable and it sounds like he is so lucky to have such an excellent mother. Ya know, it breaks my heart that there is such a stigma with Autism. I mean there are so many beautiful children with autism who are just sweet to their core and true gifts to this world. Just think, you could have given birth to a cold-hearted moron like the b**** who commented on your post. But yet the stigma lies with Autism? Give me a break.

Sending well wishes to you and your son. It sounds like you both are fighters and you will find a way to use each others' love to get through anything this life may throw at you.
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Peewee212
Reg. Sep 2012
Posted 2017-01-12 2:48 PM
Subject: RE: OT - But, I think I really just need to vent?



Extreme Veteran


Posts: 312
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Location: KS
You're a great mother!
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