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Expert
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Location: west of East Texas | For those of us that aren't near you but want to contribute... is there a paypal account we can send a friends and family gift to? Can that be added to the flyer? A good friend of mine went through this with her son and a direct paypal helped her out tremendously. | |
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 My Heart Be Happy
Posts: 9159
  
Location: Arkansas | want2chase3 - 2018-02-14 9:40 AM
winwillows - 2018-02-13 10:49 PM
We don't all have something that we can donate to this auction, but those that do, please step up to a great cause here. We have donated a ton of Renew Gold. I will up that to one ton of the Renew Gold Senior. Come on folks, if you are in a position to help, please do.
Thank you so much for everything... everyone that asks about Jacob, prays for him, prays for me and my family, thank you! Every bit of that helps and is greatly appreciated! The donations are amazing and will help us take care of Jacobs medical bills. We are fortunate to have really good health insurance, that just on a whim we added Jacob to it just a few months before all this happened. We were told to take him to St. Judes by several, well meaning folks to get great care and no medical bills.. but we have insurance and we felt we didn't need that, save it for some family that REALLY needs it. I know several of my extended family members donate to Jude monthly. And as soon as we get past this ordeal I'm definitely going to become a monthly supporter of that place, I think it's wonderful! That being said, the bills have started coming in for Jacobs care, we are a single income family, we get by, yes, I have horses.. and believe me, if it gets to the point where they need to go, they'll be gone. We are proud.. in fact, we didn't set up a go fund me account, I didn't want to... my ex husband, of all people, set it up in our name lol! I'll admit the amount we received the first month DID help us because my husband missed a lot of work in the beginning to be with Jacob and I at the hospital. If he doesn't work, he doesn't get paid... he drives a truck for a living. Yes, there's bills we have to stretch here n there when unexpected things come up, as they always do! But we always find a way to get thru it! Any donation we receive for this we are so grateful for! We have a lot of folks that are rallying for Jacob and us, but with that, also comes some people that are probably just unhappy in life and felt the need to be snarky about our event coming up. It's just sad but I had to just ignore it, it hurt to hear they said that and I shed a bunch of tears, then got over it! My point is, even if we raise half of what his bills are going to amount to, we will be stoked! We just want our Jacob to be healed, I don't care what it costs! I'll pay his bill a little at a time for the rest of my life if needed. So we are so thankful for everything, donations, prayers, thoughts, well wishes... all of it, means the world to us.
Sorry, got a bit off track and emotional, lack of sleep, not feeling that good on top of it and this dreary weather we've been having are all mood killers! I apologize.
No apologies needed at all. I think you said everything very eloquently, Momma. Happy V-day to you and J. Hugs. | |
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Go Get Em!
Posts: 13502
Location: OH. IO | Thinking of Jacob tonight,hoping he is feeling good and gaining some weight and strength back!! | |
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 A Somebody to Everybody
Posts: 41354
Location: Under The Big Sky Of Texas | jake16 - 2018-02-17 8:50 PM Thinking of Jacob tonight,hoping he is feeling good and gaining some weight and strength back!!
Yep, been thinking of that young man too. Hope that Jacob is doing great and momma is feeling like herself again.  | |
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 Namesless in BHW
Posts: 10368
Location: At the race track with Ah Dee Ohs | Just checking in on Jacob and your family this morning. Hoping all is well. Continued prayers for all of you. | |
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 Warrior Mom
Posts: 4400
| Thank you all for asking. He's doing pretty well. We have another chemo on Friday and then he will have 2 weeks off from all treatments! Then he will have 2 more consecutive fridays and then we back off chemo to once every 3 weeks. So we are starting to see the light at the end of tunnel on this journey... I think we figured approximately 16 weeks left of actual treatment. :-) | |
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A Somebody to Everybody
Posts: 41354
Location: Under The Big Sky Of Texas | want2chase3 - 2018-02-18 11:48 AM Thank you all for asking. He's doing pretty well. We have another chemo on Friday and then he will have 2 weeks off from all treatments! Then he will have 2 more consecutive fridays and then we back off chemo to once every 3 weeks. So we are starting to see the light at the end of tunnel on this journey... I think we figured approximately 16 weeks left of actual treatment. :-) So glad to hear Jacob is doing pretty well. And how are you doing/feeling?
Edited by Southtxponygirl 2018-02-18 12:01 PM
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  Fact Checker
Posts: 16572
Location: Displaced Iowegian | want2chase3 - 2018-02-18 11:48 AM Thank you all for asking. He's doing pretty well. We have another chemo on Friday and then he will have 2 weeks off from all treatments! Then he will have 2 more consecutive fridays and then we back off chemo to once every 3 weeks. So we are starting to see the light at the end of tunnel on this journey... I think we figured approximately 16 weeks left of actual treatment. :-)
 Happy to see that things are going well .... 16 weeks sounds like a long time but it will fly by ..... Take care of yourself and give that sweet child a hug ..... continued prayers .... they are working !!!! | |
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Go Get Em!
Posts: 13502
Location: OH. IO | WHOA NELLIE!!!!!THIS PAGE CANNOT BE ON SECOND PAGE UNTIL OUR BOY IS HEALTHY AND FINISHED WITH TREATMENT!!!!!How's our boy doing today? :) | |
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Warrior Mom
Posts: 4400
| He's doing well. I noticed his appetite has increased so that's a great thing. All but 1 bandage has fallen off. He won't let us take them off, he prefers they come off by themselves... long story ... but it's ok. He had 4 bandages over his incision, those all came off... then he had 4 more from radiation marks... only 1 left now. He started up with his home schooling again this week so he's getting back on track with that. Trying to return to some normalcy around here. Jacob is doing excellent I'd say! However, my other 2 kiddos, I believe, are struggling a bit. It saddens me and I feel like I haven't been attentive enough to their needs.. my daughter, she's 13 has been feeling really down.. I had to go pick her up from school Monday because she had some sort of panic attack in the cafeteria. I know those are very scary and very real... I took her to her dr and she was diagnosed with depression and anxiety. Counseling is being set up for her as well. She has one at school she talks to since this all started with Jacob. But her dr wants her to see a more specific type of psychiatrist. Sigh.... so there's that now ... I feel so bad for her but I did manage to get her back in school today without incident. My youngest son is acting out badly... my husband and I think it's to get attention, even if it's bad attention. I swear some days I feel like such a failure as a mom.. my kids are struggling and I honestly don't even know what to do right now. I talk with them individually and try to reassure them they are important and not lost in the process of Jacobs treatments, celebrations, and trials... they seem ok but then stuff like the panic attacks happen or my little guy does something super naughty, more naughty than the norm expected. Ugh... Things are going weird with my ex, we fought recently... it's all just wearing on me right now to be honest... This Saturday is my bday and my husband told me he got a sitter so we could go out and I sorta flipped out, I don't want to leave them... he was a little taken aback but agreed we could bring them along to a dinner out. I know everything is going to be ok, it's just kinda coming at me at all angles right now. | |
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Go Get Em!
Posts: 13502
Location: OH. IO | So happy for Jacob doing so well and getting back on track.You are far from a failure momma,you have your eyes wide open and getting your daughter help is wonderful.Panic attacks are a horrible thing as is depression and anxiety.As far as going out for your birthday,I can understand as a mom that you don't want to leave them,but don't forget about hubby,he did good and most likely figured you need to decompress a bit.IT WILL BE GREAT FOR YOU ALL TO GO OUT!! Kids all take things differently,so just hang on alittle longer and see if things work themselves out.As far as the ex goes,he's an ex for a reason,take care of you and yours,he has to work his own way thru it;) HOLD TIGHT MOMMA,THINGS WILL GET BETTER,MANY PRAYERS FOR YOUR DAUGHTER,just keep your eyes and heart wide open to her.As for the little one,hmmmmmmmm,hold him tight.Thinking of you everyday.
Edited by jake16 2018-02-21 5:40 PM
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A Somebody to Everybody
Posts: 41354
Location: Under The Big Sky Of Texas | want2chase3 - 2018-02-21 5:26 PM He's doing well. I noticed his appetite has increased so that's a great thing. All but 1 bandage has fallen off. He won't let us take them off, he prefers they come off by themselves... long story ... but it's ok. He had 4 bandages over his incision, those all came off... then he had 4 more from radiation marks... only 1 left now. He started up with his home schooling again this week so he's getting back on track with that. Trying to return to some normalcy around here. Jacob is doing excellent I'd say! However, my other 2 kiddos, I believe, are struggling a bit. It saddens me and I feel like I haven't been attentive enough to their needs.. my daughter, she's 13 has been feeling really down.. I had to go pick her up from school Monday because she had some sort of panic attack in the cafeteria. I know those are very scary and very real... I took her to her dr and she was diagnosed with depression and anxiety. Counseling is being set up for her as well. She has one at school she talks to since this all started with Jacob. But her dr wants her to see a more specific type of psychiatrist. Sigh.... so there's that now ... I feel so bad for her but I did manage to get her back in school today without incident. My youngest son is acting out badly... my husband and I think it's to get attention, even if it's bad attention. I swear some days I feel like such a failure as a mom.. my kids are struggling and I honestly don't even know what to do right now. I talk with them individually and try to reassure them they are important and not lost in the process of Jacobs treatments, celebrations, and trials... they seem ok but then stuff like the panic attacks happen or my little guy does something super naughty, more naughty than the norm expected. Ugh... Things are going weird with my ex, we fought recently... it's all just wearing on me right now to be honest... This Saturday is my bday and my husband told me he got a sitter so we could go out and I sorta flipped out, I don't want to leave them... he was a little taken aback but agreed we could bring them along to a dinner out. I know everything is going to be ok, it's just kinda coming at me at all angles right now.
Your family sounds very normal, you just keep doing what your doing, things are not going to go smoothly all the time theres going to be a bump in the road here and there, but I think and others on here do too that your doing what any normal mom would do, you cant be everywhere at once, just try to give each kido one on one time with you, shopping, movie time are just longs walks when the weather is good, but with the way the weather has been overcast and rainy will put anybody in a blaaa mood, so hang in there mom your doing the best you can.. | |
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Warrior Mom
Posts: 4400
| Another thing I'm struggling with badly is my ex wants to take jacob to Las Vegas next month for a baseball game and to be part of the opening ceremony. I understand how exciting that must be to his father because that's something he never got to do and I know jacob was excited, but he admitted he was nervous. We won't be going, me and my husband, we can't afford to go and I can't leave the others. When he first mentioned it to me I expressed that I thought it was a bad idea because of all the sickness going around and I thought it was a bad idea to take him on a flight to Vegas, being in a hotel and a crowded baseball game. He agreed and said he'd try to find another time or reschedule. I guess he decided not to, he asked our dr if jacob could go and he said it'd probably be ok. I was shocked he said ok but he's the dr so..... I still think it's a,terrible idea but not much I can do if the dr said it was ok. I'm worried sick already... the risk isn't worth it... if he gets sick, he's hospitalized... I feel like my hands are tied on this one. I guess I just need to try and not worry and let Jacob go have a great experience. He hadn't been away from me since the diagnosis so I'm sure I'm just feeling paranoid. But I'll never be convinced that this is a good idea for him... at least not right now while still going thru chemo. | |
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Fact Checker
Posts: 16572
Location: Displaced Iowegian | want2chase3 - 2018-02-21 5:56 PM Another thing I'm struggling with badly is my ex wants to take jacob to Las Vegas next month for a baseball game and to be part of the opening ceremony. I understand how exciting that must be to his father because that's something he never got to do and I know jacob was excited, but he admitted he was nervous. We won't be going, me and my husband, we can't afford to go and I can't leave the others. When he first mentioned it to me I expressed that I thought it was a bad idea because of all the sickness going around and I thought it was a bad idea to take him on a flight to Vegas, being in a hotel and a crowded baseball game. He agreed and said he'd try to find another time or reschedule. I guess he decided not to, he asked our dr if jacob could go and he said it'd probably be ok. I was shocked he said ok but he's the dr so..... I still think it's a,terrible idea but not much I can do if the dr said it was ok. I'm worried sick already... the risk isn't worth it... if he gets sick, he's hospitalized... I feel like my hands are tied on this one. I guess I just need to try and not worry and let Jacob go have a great experience. He hadn't been away from me since the diagnosis so I'm sure I'm just feeling paranoid. But I'll never be convinced that this is a good idea for him... at least not right now while still going thru chemo.
From a mother's point of view, I wouldn't think that it would be a very good idea for him to be out and about in big crowds ..... and would his father be very attentive to health safety needs? I can't believe that the Dr. was OK with that .... maybe have a serious talk with the Dr.? If he still presses the issue ... just tell him that Jacob can go but ONLY IF your Ex would like to pay for you or your husband to accompany them ......Regarding the other children, give them each a day with just you to do whatever they want to do ....it is hard on the family of a sick child but now that he is getting better, things will even out. You ARE a good mom ..... Don't stress yourself too much! | |
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Go Get Em!
Posts: 13502
Location: OH. IO | NJJ - 2018-02-21 7:27 PM
want2chase3 - 2018-02-21 5:56 PM Another thing I'm struggling with badly is my ex wants to take jacob to Las Vegas next month for a baseball game and to be part of the opening ceremony. I understand how exciting that must be to his father because that's something he never got to do and I know jacob was excited, but he admitted he was nervous. We won't be going, me and my husband, we can't afford to go and I can't leave the others. When he first mentioned it to me I expressed that I thought it was a bad idea because of all the sickness going around and I thought it was a bad idea to take him on a flight to Vegas, being in a hotel and a crowded baseball game. He agreed and said he'd try to find another time or reschedule. I guess he decided not to, he asked our dr if jacob could go and he said it'd probably be ok. I was shocked he said ok but he's the dr so..... I still think it's a,terrible idea but not much I can do if the dr said it was ok. I'm worried sick already... the risk isn't worth it... if he gets sick, he's hospitalized... I feel like my hands are tied on this one. I guess I just need to try and not worry and let Jacob go have a great experience. He hadn't been away from me since the diagnosis so I'm sure I'm just feeling paranoid. But I'll never be convinced that this is a good idea for him... at least not right now while still going thru chemo.
From a mother's point of view, I wouldn't think that it would be a very good idea for him to be out and about in big crowds ..... and would his father be very attentive to health safety needs? I can't believe that the Dr. was OK with that .... maybe have a serious talk with the Dr.? If he still presses the issue ... just tell him that Jacob can go but ONLY IF your Ex would like to pay for you or your husband to accompany them ......Regarding the other children, give them each a day with just you to do whatever they want to do ....it is hard on the family of a sick child but now that he is getting better, things will even out. You ARE a good mom ..... Don't stress yourself too much!
Im with NJJ,AND I WOULD JUST SAY NO DAM WAY!!!!!!!ASK HIM IF HE IS PREPARED FOR THE OUTCOME IF JACOB WERE TO GET SICK.IF HE GETS THE FLU IT WILL TAKE ALL HE HAS TO RECOVER.TALK TO DOCTOR ASAP AND GET A COURT ORDER IF YOU HAVE TO.ONLY MY OPINION BUT NO WAY IN HELL WOULD I LET HIM GO.Sounds like dad is trying to be the hero while putting Jacob at risk.sorry if I sound harsh,but it's only my opinion. | |
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Warrior Mom
Posts: 4400
| jake16 - 2018-02-21 7:15 PM
NJJ - 2018-02-21 7:27 PM
want2chase3 - 2018-02-21 5:56 PM Another thing I'm struggling with badly is my ex wants to take jacob to Las Vegas next month for a baseball game and to be part of the opening ceremony. I understand how exciting that must be to his father because that's something he never got to do and I know jacob was excited, but he admitted he was nervous. We won't be going, me and my husband, we can't afford to go and I can't leave the others. When he first mentioned it to me I expressed that I thought it was a bad idea because of all the sickness going around and I thought it was a bad idea to take him on a flight to Vegas, being in a hotel and a crowded baseball game. He agreed and said he'd try to find another time or reschedule. I guess he decided not to, he asked our dr if jacob could go and he said it'd probably be ok. I was shocked he said ok but he's the dr so..... I still think it's a,terrible idea but not much I can do if the dr said it was ok. I'm worried sick already... the risk isn't worth it... if he gets sick, he's hospitalized... I feel like my hands are tied on this one. I guess I just need to try and not worry and let Jacob go have a great experience. He hadn't been away from me since the diagnosis so I'm sure I'm just feeling paranoid. But I'll never be convinced that this is a good idea for him... at least not right now while still going thru chemo.
From a mother's point of view, I wouldn't think that it would be a very good idea for him to be out and about in big crowds ..... and would his father be very attentive to health safety needs? I can't believe that the Dr. was OK with that .... maybe have a serious talk with the Dr.? If he still presses the issue ... just tell him that Jacob can go but ONLY IF your Ex would like to pay for you or your husband to accompany them ......Regarding the other children, give them each a day with just you to do whatever they want to do ....it is hard on the family of a sick child but now that he is getting better, things will even out. You ARE a good mom ..... Don't stress yourself too much!
Im with NJJ,AND I WOULD JUST SAY NO DAM WAY!!!!!!!ASK HIM IF HE IS PREPARED FOR THE OUTCOME IF JACOB WERE TO GET SICK.IF HE GETS THE FLU IT WILL TAKE ALL HE HAS TO RECOVER.TALK TO DOCTOR ASAP AND GET A COURT ORDER IF YOU HAVE TO.ONLY MY OPINION BUT NO WAY IN HELL WOULD I LET HIM GO.Sounds like dad is trying to be the hero while putting Jacob at risk.sorry if I sound harsh,but it's only my opinion.
I do not think you are wrong with that assumption. I'm very concerned about his health and with the flu going around its just a plain stupid idea. Believe me, we, my hubby and I, were absolutely shocked when the dr said ok. I'm just going to reiterate again to my ex about how reckless this is, regardless of what the dr said and how angry I'll be if jacob falls sick. Things are already awkward and dicey with us from the other day. I'm hoping he's at least gotten over it already... don't try to punish me by taking jacob and jeopardizing his health just to "get his way" THE ONE AND ONLY ONE WHO MATTERS HERE IS JACOB.. all our bs aside... | |
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A Somebody to Everybody
Posts: 41354
Location: Under The Big Sky Of Texas | To me its not time for Jacob to be getting in the mix with the public, his health is just to vulnerable, the Flu just scares me to death and it hits the younger ones so much harder.. His dad should be thinking about Jacob's health at this point, there will be other baseballs games to go to but not now, his immune systum is just to weak.. I'm with you MOM not worth the risk and his dad should know better. | |
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My Heart Be Happy
Posts: 9159
Location: Arkansas | I believe Miss Norma, Miss Roxie, and Miss Mary pretty much summed it up. I think I'd talk to the doctor again, alone, and explain your concerns. Ex husband needs to take the big picture into consideration. . . .
You are doing a phenomenal job of handling all this--what strength and courage you have  | |
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A Somebody to Everybody
Posts: 41354
Location: Under The Big Sky Of Texas | Chandler's Mom - 2018-02-21 9:18 PM I believe Miss Norma, Miss Roxie, and Miss Mary pretty much summed it up. I think I'd talk to the doctor again, alone, and explain your concerns. Ex husband needs to take the big picture into consideration. . . . You are doing a phenomenal job of handling all this--what strength and courage you have
What Debra just said about talking to Jacob's doctor and what strenght and courage you have. | |
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Fact Checker
Posts: 16572
Location: Displaced Iowegian | Update? Still thinking of you and your family !!!!
# JacobStrong | |
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