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| A small but positive update.. he's been running a fever, the took blood and so far everything is coming back negative. They are testing his port to see if maybe something is going on there. He's so much more alert today sitting up and eating. Huge improvement. Plus he had 2 of his classmates and baseball team members come visit him today.. first time I've seen my baby smile since we checked in the er Tuesday morning. It made my heart so happy to see him like that. So now we just wait, they started him on a round of antibiotics just in case. It's undecided still if he can go home today. The prayers are working! God Bless! |
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Go Get Em!
Posts: 13502
     Location: OH. IO | want2chase3 - 2017-12-02 2:57 PM
A small but positive update.. he's been running a fever, the took blood and so far everything is coming back negative. They are testing his port to see if maybe something is going on there. He's so much more alert today sitting up and eating. Huge improvement. Plus he had 2 of his classmates and baseball team members come visit him today.. first time I've seen my baby smile since we checked in the er Tuesday morning. It made my heart so happy to see him like that. So now we just wait, they started him on a round of antibiotics just in case. It's undecided still if he can go home today. The prayers are working! God Bless!
So happy he got to see his friends!!!Thinking positive thoughts and prayers for all of you.Im thinking about you and your family constantly. |
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 BHW Resident Surgeon
Posts: 25351
          Location: Bastrop, Texas | I’ve heard nothing but good things about Scott and White.
Protocols for cancer are not kept secret. They are widely shared across the country and I’m confident his doctors will be very in tune to the latest. |
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Regular
Posts: 89
  
| Thought about you yesterday. One of my son's best friends ran in the St. Jude marathon yesterday and told her about your son. Glad things are going well and he got to see his friends that make's all the difference. If I knew how to post a picture I'd post a picture of Caroline running yesterday continue hugs and prayers for your family |
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 Warrior Mom
Posts: 4400
     
| I'm feeling a whole bunch of different emotions this morning. I suppose it's because lack of sleep. I've been pretty steady up until now. He's doing better, we actually made it thru the night without fever so that's great! I'm really hoping today is the day we go home. I'm sorry but this place may end up being the place I can freely vent. I'm trying to focus only on my son and getting him well. But as . I kept reminding myself this isn't about me or how I feel, shift focus on my son. It's going to be a learning curve for me to put my blinders on and ignore the unimportant things and people. My son needs me to be 100% focused on him and his journey. Sorry, I'm just venting here I'm sure I'm a bit under slept and stir crazy being inside this room all the time. I plan to go home as soon as his father gets here so I can clear my head, get a hot meal and shower before I come back
Edited by want2chase3 2017-12-05 11:10 AM
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    Location: South Dakota | want2chase3 - 2017-12-03 8:09 AM I'm feeling a whole bunch of different emotions this morning. I suppose it's because lack of sleep. I've been pretty steady up until now. He's doing better, we actually made it thru the night without fever so that's great! I'm really hoping today is the day we go home. I'm sorry but this place may end up being the place I can freely vent. I'm trying to focus only on my son and getting him well. But as some of you know I do have an ex husband, my son's father.. of course he's been here, which I want. But he's being so over bearing, I'm sure it's his way of dealing with it. We don't have the best past but all that aside now that we are fighting for our sons life. He was here last night with his current girlfriend and I just felt out of place. My husband had gone home. I feel sad that no one from "our side" has come visit us in here, but lots from my ex side has been here, I'm grateful for the visitors for my son it makes him happy. One of my sister in laws that I thought I was the closest to hasn't even called or text me since we found out... I was on fb last night and saw that she had posted pics of her, her husband some mutual friends of ours and my husband having a good time down at her house and wrote great family night having fun! And of course they were all cutting it up drinking and taking lots of pics. I felt angry at first, then hurt. I kept reminding myself this isn't about me or how I feel, shift focus on my son. It's going to be a learning curve for me to put my blinders on and ignore the unimportant things and people. My son needs me to be 100% focused on him and his journey. Sorry, I'm just venting here I'm sure I'm a bit under slept and stir crazy being inside this room all the time. I plan to go home as soon as his father gets here so I can clear my head, get a hot meal and shower before I come back
It must be so hard to deal with people, who are just so wrapped up in their own worlds...try to focus on what truly matters, and get some rest...also the Chapel in the hospital, would be a good place to go, to pray, meditate, and decompress. My thoughts, prayers, are with you thoughout the day....Hugs. |
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 Warrior Mom
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| ridejg - 2017-12-03 8:36 AM
want2chase3 - 2017-12-03 8:09 AM I'm feeling a whole bunch of different emotions this morning. I suppose it's because lack of sleep. I've been pretty steady up until now. He's doing better, we actually made it thru the night without fever so that's great! I'm really hoping today is the day we go home. I'm sorry but this place may end up being the place I can freely vent. I'm trying to focus only on my son and getting him well. But as some of you know I do have an ex husband, my son's father.. of course he's been here, which I want. But he's being so over bearing, I'm sure it's his way of dealing with it. We don't have the best past but all that aside now that we are fighting for our sons life. He was here last night with his current girlfriend and I just felt out of place. My husband had gone home. I feel sad that no one from "our side" has come visit us in here, but lots from my ex side has been here, I'm grateful for the visitors for my son it makes him happy. One of my sister in laws that I thought I was the closest to hasn't even called or text me since we found out... I was on fb last night and saw that she had posted pics of her, her husband some mutual friends of ours and my husband having a good time down at her house and wrote great family night having fun! And of course they were all cutting it up drinking and taking lots of pics. I felt angry at first, then hurt. I kept reminding myself this isn't about me or how I feel, shift focus on my son. It's going to be a learning curve for me to put my blinders on and ignore the unimportant things and people. My son needs me to be 100% focused on him and his journey. Sorry, I'm just venting here I'm sure I'm a bit under slept and stir crazy being inside this room all the time. I plan to go home as soon as his father gets here so I can clear my head, get a hot meal and shower before I come back
It must be so hard to deal with people, who are just so wrapped up in their own worlds...try to focus on what truly matters, and get some rest...also the Chapel in the hospital, would be a good place to go, to pray, meditate, and decompress. My thoughts, prayers, are with you thoughout the day....Hugs.
You are so right. And I know that. Just because my world has been flipped upside down everyone else's doesn't have to follow suit. Thank you. |
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 Warrior Mom
Posts: 4400
     
| A great update, he's doing so well. He wanted to go outside today so we took him in the wheelchair and we sat out in the garden a while. My husband brought him his all time favorite, a bean burrito from taco bell lol! He gobbled up more than half of it. He also got to take a nice warm shower too, first 1 he's had since being admitted. He decided he was going to walk on his own all the way back to his room. He's getting there! Dr's said as long as the fever stays away and he keeps drinking his water and using his breathing machine to expand his lungs he can come home tonight yay!!! God Bless and thank ya'll for the continued prayers |
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Go Get Em!
Posts: 13502
     Location: OH. IO | Yay!!!!! When you get home please try and get some rest:) |
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 A Somebody to Everybody
Posts: 41354
              Location: Under The Big Sky Of Texas | Prayers going his way, I hate hearing when a young person is going threw a hard time..     |
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"Heck's Coming With Me"
Posts: 10794
        Location: Kansas | My heart goes out to you. I absolutely cannot fathom how heartsick you must be and I'm wishing the best for you and your son in the road ahead.
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 My Heart Be Happy
Posts: 9159
      Location: Arkansas | Continuing to lift you and Jacob up to God. Hopefully y'all will be headed home in a few hours, and I bet being back in "your" environment (along with some rest) will help you recharge  |
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 Warrior Mom
Posts: 4400
     
| We are loading up and we are going home!!! Praise Jesus! |
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  Fact Checker
Posts: 16572
       Location: Displaced Iowegian | want2chase3 - 2017-12-03 8:09 AM I'm feeling a whole bunch of different emotions this morning. I suppose it's because lack of sleep. I've been pretty steady up until now. He's doing better, we actually made it thru the night without fever so that's great! I'm really hoping today is the day we go home. I'm sorry but this place may end up being the place I can freely vent. I'm trying to focus only on my son and getting him well. But as some of you know I do have an ex husband, my son's father.. of course he's been here, which I want. But he's being so over bearing, I'm sure it's his way of dealing with it. We don't have the best past but all that aside now that we are fighting for our sons life. He was here last night with his current girlfriend and I just felt out of place. My husband had gone home. I feel sad that no one from "our side" has come visit us in here, but lots from my ex side has been here, I'm grateful for the visitors for my son it makes him happy. One of my sister in laws that I thought I was the closest to hasn't even called or text me since we found out... I was on fb last night and saw that she had posted pics of her, her husband some mutual friends of ours and my husband having a good time down at her house and wrote great family night having fun! And of course they were all cutting it up drinking and taking lots of pics. I felt angry at first, then hurt. I kept reminding myself this isn't about me or how I feel, shift focus on my son. It's going to be a learning curve for me to put my blinders on and ignore the unimportant things and people. My son needs me to be 100% focused on him and his journey. Sorry, I'm just venting here I'm sure I'm a bit under slept and stir crazy being inside this room all the time. I plan to go home as soon as his father gets here so I can clear my head, get a hot meal and shower before I come back
Kudos to you for attitude towards this journey...it IS all about your son. Your positive attitude will be better for him and help him through this trying time.....Many....many ..... many prayers for his complete recovery, for your continued strength and for his Dr.'s healing hands..... and I think that you know that you can come here anytime to vent or for support.... |
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 My Heart Be Happy
Posts: 9159
      Location: Arkansas | want2chase3 - 2017-12-03 2:26 PM
We are loading up and we are going home!!! Praise Jesus!
Woo hoo  |
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 Warrior Mom
Posts: 4400
     
| If anyone would like to follow along in Facebook, my neice and my sister set up a page just for him so we could post pics and progress..
It's called Jacob strong
Gotta pay attention to the capital J and lower case "s" to find him... he's the little guy with the baseball glove .. there was a few other Jacob Strongs on there.
I'll keep updating here because I know a lot of people don't do fb. |
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     Location: South Dakota | Sending more prayers. |
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 Take a Picture
Posts: 12837
       
| Sending more prayers. Forgot to tell you. Take one day at a time. Be thankful for each day. |
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 Take a Picture
Posts: 12837
       
| want2chase3 - 2017-12-03 8:09 AM
I'm feeling a whole bunch of different emotions this morning. I suppose it's because lack of sleep. I've been pretty steady up until now. He's doing better, we actually made it thru the night without fever so that's great! I'm really hoping today is the day we go home. I'm sorry but this place may end up being the place I can freely vent. I'm trying to focus only on my son and getting him well. But as some of you know I do have an ex husband, my son's father.. of course he's been here, which I want. But he's being so over bearing, I'm sure it's his way of dealing with it. We don't have the best past but all that aside now that we are fighting for our sons life. He was here last night with his current girlfriend and I just felt out of place. My husband had gone home. I feel sad that no one from "our side" has come visit us in here, but lots from my ex side has been here, I'm grateful for the visitors for my son it makes him happy. One of my sister in laws that I thought I was the closest to hasn't even called or text me since we found out... I was on fb last night and saw that she had posted pics of her, her husband some mutual friends of ours and my husband having a good time down at her house and wrote great family night having fun! And of course they were all cutting it up drinking and taking lots of pics. I felt angry at first, then hurt. I kept reminding myself this isn't about me or how I feel, shift focus on my son. It's going to be a learning curve for me to put my blinders on and ignore the unimportant things and people. My son needs me to be 100% focused on him and his journey. Sorry, I'm just venting here I'm sure I'm a bit under slept and stir crazy being inside this room all the time. I plan to go home as soon as his father gets here so I can clear my head, get a hot meal and shower before I come back
Please remember that different people handle stressful situations differently. That being said, remember the song YOU FIND OUT WHO YOUR FRIENDS ARE? It does hold very true. I have been in your shoes. I also want to add, if you need help from someone ask. If you have a true friend, they will help. I will tell you that you cannot do everything yourself.
Edited by streakysox 2017-12-03 10:33 PM
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