Long Shot -Anyone on here diagnosed with Scleroderma and/or CREST Syndrome?

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Long Shot -Anyone on here diagnosed with Scleroderma and/or CREST Syndrome? Moderators: luluwhit, gotothewhip, cindyt, crossspur, ForumAdmin Jump to page :	Last activity 2017-06-09 1:59 PM 69 replies, 10290 views View previous thread :: View next thread
General Discussion -> Barrel Talk


Southtxponygirl Reg. Nov 2006	Posted 2017-06-07 3:28 PM Subject: RE: Long Shot -Anyone on here diagnosed with Scleroderma and/or CREST Syndrome?
A Somebody to Everybody Posts: 41354 Location: Under The Big Sky Of Texas	IRunOnFaith - 2017-06-07 3:22 PM Southtxponygirl - 2017-06-07 2:25 PM IRunOnFaith - 2017-06-07 2:23 PM Southtxponygirl - 2017-06-07 1:58 PM Hey did her wetsuit come in yet? Been thinking about her this past weekend while all the grandkids were here playing in the pool/horse water tank Her wetsuit I bought on sale and their website is down for inventory so it won't be shipping out for a while until their website is back up... At least that's how I took it. Not sure when I will get it... I didn't think it would take this long. i figured I would have it in a few days. Speaking of pools, She found her a pool at Walmart the other day. It's an inflatable unicorn. She has NEVER yelled in public until she saw that dang pool... Then it was all over but the siging. "Mum! Horse! Horrssse!!! Mum!!!!! NNNAAAAAAAYYYY! I buy it Mum I buy it! " Everyone we passed in the store laughed at us lol Awwww so cute, this just made my heart swell .. She sounds like shes full of energy Like a wound up jack russell puppy with no where to go LOL...
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NJJ Reg. Jul 2006	Posted 2017-06-07 3:36 PM Subject: RE: Long Shot -Anyone on here diagnosed with Scleroderma and/or CREST Syndrome?
Fact Checker Posts: 16575 Location: Displaced Iowegian	Southtxponygirl - 2017-06-07 3:28 PM IRunOnFaith - 2017-06-07 3:22 PM Southtxponygirl - 2017-06-07 2:25 PM IRunOnFaith - 2017-06-07 2:23 PM Southtxponygirl - 2017-06-07 1:58 PM Hey did her wetsuit come in yet? Been thinking about her this past weekend while all the grandkids were here playing in the pool/horse water tank Her wetsuit I bought on sale and their website is down for inventory so it won't be shipping out for a while until their website is back up... At least that's how I took it. Not sure when I will get it... I didn't think it would take this long. i figured I would have it in a few days. Speaking of pools, She found her a pool at Walmart the other day. It's an inflatable unicorn. She has NEVER yelled in public until she saw that dang pool... Then it was all over but the siging. "Mum! Horse! Horrssse!!! Mum!!!!! NNNAAAAAAAYYYY! I buy it Mum I buy it! " Everyone we passed in the store laughed at us lol Awwww so cute, this just made my heart swell .. She sounds like shes full of energy Like a wound up jack russell puppy with no where to go LOL... ^^^^^ This made me really belly laugh !!!!!!
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Southtxponygirl Reg. Nov 2006	Posted 2017-06-07 3:37 PM Subject: RE: Long Shot -Anyone on here diagnosed with Scleroderma and/or CREST Syndrome?
A Somebody to Everybody Posts: 41354 Location: Under The Big Sky Of Texas	NJJ - 2017-06-07 3:36 PM Southtxponygirl - 2017-06-07 3:28 PM IRunOnFaith - 2017-06-07 3:22 PM Southtxponygirl - 2017-06-07 2:25 PM IRunOnFaith - 2017-06-07 2:23 PM Southtxponygirl - 2017-06-07 1:58 PM Hey did her wetsuit come in yet? Been thinking about her this past weekend while all the grandkids were here playing in the pool/horse water tank Her wetsuit I bought on sale and their website is down for inventory so it won't be shipping out for a while until their website is back up... At least that's how I took it. Not sure when I will get it... I didn't think it would take this long. i figured I would have it in a few days. Speaking of pools, She found her a pool at Walmart the other day. It's an inflatable unicorn. She has NEVER yelled in public until she saw that dang pool... Then it was all over but the siging. "Mum! Horse! Horrssse!!! Mum!!!!! NNNAAAAAAAYYYY! I buy it Mum I buy it! " Everyone we passed in the store laughed at us lol Awwww so cute, this just made my heart swell .. She sounds like shes full of energy Like a wound up jack russell puppy with no where to go LOL... ^^^^^ This made me really belly laugh !!!!!! Me too, now I need to find me some MEME's of a jack russell pup..
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Southtxponygirl Reg. Nov 2006	Posted 2017-06-07 3:42 PM Subject: RE: Long Shot -Anyone on here diagnosed with Scleroderma and/or CREST Syndrome?
A Somebody to Everybody Posts: 41354 Location: Under The Big Sky Of Texas	Oh my gosh there is so many cute MeMe's (99cc3d0da507fff03e80ec35216662d0.jpg) (th (16).jpg) (running-jack-russell-dog-meme.jpg) Attachments ---------------- 99cc3d0da507fff03e80ec35216662d0.jpg (81KB - 231 downloads) th (16).jpg (9KB - 212 downloads) running-jack-russell-dog-meme.jpg (88KB - 213 downloads)
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IRunOnFaith Reg. Dec 2009	Posted 2017-06-07 3:57 PM Subject: RE: Long Shot -Anyone on here diagnosed with Scleroderma and/or CREST Syndrome?
Expert Posts: 3815 Location: The best kept secret in TX	Southtxponygirl - 2017-06-07 3:42 PM Oh my gosh there is so many cute MeMe's YES!!!!! THIS IS MY CHILD!!!!! I wish I could video her in the morning's. She wakes up and literally jumps on the bed until I get her held down long enough to get regular clothes on her. She walks circles around me at stores or at people's houses when I'm just standing talking to people. One hand on my legs while she walks around like a newborn foal. She sings the whole time she's walking around me. I think I still have the video of the first time she ever had sweet tea in her system... That was fun: She was RUNNING around a phone display in the Verizon store and was saying "Hurry! Hurry! Hurry!" She had one hand pulled up like she was actually running and was huffing and puffing like she was actually running. It was pretty funny. I told her to come stand by me and behave and she says: "Okay, I stand." And then started walking around me like a newborn foal humming a song. She got in a lot of trouble that day... We order unsweet now... We learned our lesson. Never stops moving. Edited by IRunOnFaith 2017-06-07 3:59 PM
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GLP Reg. Oct 2013	Posted 2017-06-07 4:54 PM Subject: RE: Long Shot -Anyone on here diagnosed with Scleroderma and/or CREST Syndrome?
I just read the headlines Posts: 4483	Have you contacted a Shriner's Hospital? I don't know what they cover, but a friend had a son with a bone disease and they were tremendously helpful, financially and were very supportive.
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jake16 Reg. Apr 2006	Posted 2017-06-07 5:41 PM Subject: RE: Long Shot -Anyone on here diagnosed with Scleroderma and/or CREST Syndrome?
Go Get Em! Posts: 13503 Location: OH. IO	SO HAPPY ABOUT THE INSURANCE!!!!!!YOUR BABY GIRL SOUNDS LIKE A REAL HAPPY GIRL!!!!
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IRunOnFaith Reg. Dec 2009	Posted 2017-06-08 8:12 AM Subject: RE: Long Shot -Anyone on here diagnosed with Scleroderma and/or CREST Syndrome?
Expert Posts: 3815 Location: The best kept secret in TX	GLP - 2017-06-07 4:54 PM Have you contacted a Shriner's Hospital? I don't know what they cover, but a friend had a son with a bone disease and they were tremendously helpful, financially and were very supportive. Yes. The Scottish Rites Hospital is part of the Shriners. My Daddy is a Mason but is on the other side of it so he isn't a Shriner. He has many friends who can refer me to the Hospital. The Scottish Rites Hospital has to have a written referal from an active Shriner on your behalf before they accept you. Still waiting to hear back,
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flyingcolors Reg. Aug 2005	Posted 2017-06-09 10:59 AM Subject: RE: Long Shot -Anyone on here diagnosed with Scleroderma and/or CREST Syndrome?
Elite Veteran Posts: 670 Location: Running my kids somewhere.	Hoping you receive your referral soon. They are very good about their willingness to help.
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IRunOnFaith Reg. Dec 2009	Posted 2017-06-09 1:59 PM Subject: RE: Long Shot -Anyone on here diagnosed with Scleroderma and/or CREST Syndrome?
Expert Posts: 3815 Location: The best kept secret in TX	flyingcolors - 2017-06-09 10:59 AM Hoping you receive your referral soon. They are very good about their willingness to help. Thank you so much. I agree. This won't be the first time the Masons/Shriners have helped me and it won't be the last. I don't know everything about them but I know that if my Daddy is a memeber there is a good reason as to why he's a member.
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